MistyFying,
I have a friend who's son was born with congenital heart disease/failure along with a hole or two as well. He had open heart surgery a day or two after being born.

He was such a fighter, and had many operations over his lifetime. His lifetime expanded over 13 years I think it was. He was also diagnosed with diabetes a few years ago, which didn't help at all.

There are many wonderful and funny stories to be told about this little boy and his strong life he led.

I hope that Zeke has a life as rich as Justin did, full of life, love, laughter and the biggest spirit ever.