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Lovely poem x
I was told before hand that ds1 would probably need a few units and did I consent. Found out the next day that he'd had it over night. That was pmh picu though.
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That is sad Lysndan, may he RIP
I am glad Amelia is getting better, little touches still mean so much to both of you.
Gorgeous poem BAL I love it
Indy was in for Xmas 08, the staff did give her a little Christmas teddy and a card with a photo and hand and footprints. They even let all 5 kids and DH in while I was having a cuddle for our first family photo, a treasured moment
Last edited by RainbowBrite; December 16th, 2011 at 10:53 PM.
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BAL love that poem. Hope you don't mind i stole it to post to Facebook
We were home just before Chrissy but got a Chrissy blanket from the cot he was in. Its always sad when a little one goes. rip little angel.
When we were at ke i became friends with a mum and bub that had been in there for a month before us. Found out a week after we left he passed in his sleep. He was a 25 weeker. He had lots of problems. His mum went to the toilet one morning and saw the umbilical cord. his intestines were outside, hole in his heart and a very sick little man. He kept getting infections. I saw her yesterday. She is pg again. 12 weeks. She isnt coping very well. But what do you say. I gave her a big hug and she let it all out. She is freaking that it will happen again. She has my number and i told her to ring if she needs anything. I hope she doesnt go through it again and its making me second guess ttc too.
Lysndan. Hope you are all doing ok today and get cuddles. Hold her/ sit with her as much as you can. She will know you are there. Its amazing what our bubbas can go through. She is a strong little girl.
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hi all
RIP little man!
Just wishing BAL and Lysndan, all the best.
Thinking of you both and those gorgeous little bubs,
My little man was in NICU for xmas last year, he got a gorgeous little blanket and a teddy. They did a photo with santa as well, but they have all of santa in and almost cut Matteo off the photo, ooops!
Last edited by ButterflyForever; December 18th, 2011 at 06:44 AM.
So, my hubby is going back to work today... I'm so lonely already. He just left and I'm in tears. I'm so scared of being on my own through this all.
My supply has dropped from 440ml a day to 300... Even though I'm expressing like crazy. What is wrong with me?
Amelia is doing well. She's growing and her CRP has been less than 5 in all the bloods she's had done on the past few days. She's looking pale because they've made her anaemic with all the blood they have taken.. so they'll probably give her a top up soon.. their glad they haven't had to do one yet though.
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Lynsdan - awww hugs hun. Stress will affect your milk supply, but 300ml is still awesome. Make sure you are looking after you as well. Glad Amelia is going well, she sounds like a strong little girl.
Thinking of you both,
BellyBelly Member
The intestines on the outside is called Gastroschisis. My daughter was born with it. Unfortunately, there's not much they can do at 25 weeks with that kind of defect. Very very few gastro-bubs survive under 30 weeks. If you talk to her, please tell her to go onto facebook and join Avery's Angels. (Avery's Angels; NPO funding Gastroschisis Research and Support)
There are many parents on there who have lost a baby with Gastroschisis and are going through a second pregnancy. She can be set up with a veteran, someone she can talk to who has been through a similar situation. It's a great support group.
lysndan: Been thinking of you and praying for Amelia everyday. I hope everything goes well. When we were in SCBU there was a very sick little girl there and they were waiting for her to pass away. Teen parents, too. It was hard to see.
BAL: Been stalking your blog everyday and also praying for Jett everyday. He's sooo cute!! Such a strong little man.
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Hun dont over express, stick to the 3-4hrs. Dont be afraid to ask for help. So many NICU mums have trouble expressing, you are doing so well xx
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I need strength. This is so draining. Going to the gp today. I am so traumatised by the birth and being in this position.... I hate myself. I hate my body for failing my daughter. My bp is still stupidly high.
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Aw, Lysn.
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Please don't be so hard on yourself. You have still carried and birthed your beautiful girl, she is here and she is a fighter that is something to be proud of
You are being the best mummy by just being their for her, your touch means a lot, you are showing her what loving touch is. She loves listening to your voice, the voice she heard while in the womb, it is warm and comforting. She knows you and can feel your love.
The little things mean so much and help her be strong and grow.
The hospital has a wonderful psych staff and they are there for you any time you need to talk just ask your nurse and she can help.
More big
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Lysdan, try not to stress too much about your supply, your doing great, keep up your fluids, I found sometimes looking at a pic of Nixon whilst expressing helped he flow get going. Thinking of miss Amelia and master Jett I hope they are both growing stronger and mummy's are also keeping well
So I walk into the nursery this morning, and there they are putting in a canular and stuff for a blood transfusion. Oh boy. Seeing her that upset...
Nice to know obviously they aren't going to tell me my own daughters condition before starting procedures yet again. :banghead: a note is definately going up.
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It used to annoy me that they wouldn't tell me when they were going to move DDs long line, do eye test, xrays.
I feel your pain.
Merry Christmas ladies. I'm off to the hospital to see my baby girl.
Today doesn't feel like Xmas. We will prob hav our chrissy in Feb sometime.
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Ladies, I'm really struggling being on here, seeing people happily pregnant, seeing people complain about their pregnancies when I'd love to be still healthy and preg... and birth announcements and it hurts so bad.
So if you need me feel free to pm me on fb I think I need a break. I will update my blog but I just need to get a handle on things its hard at the moment. Running up to the hospital, expressing, trying to sleep, trying to handle my bp meds and trying to eat and of course getting a grasp of the NICU and knowing and spending time with my little girl.
I hope to be back soon when I've got more of a handle on things.
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Oh love, soon you'll be like me and not remember you ever had a normal life Lol.. Although hopefully 12wks down the track you'll be out with your little girl. I'll keep stalking your blog
I'm scared of january. Jett needs the op, can't move forward without it, but I'm scared they wont be able to do anything. That is the biggest risk of the op. They have no doubt he's strong enough, they think he's as well as he's going to get, but they are worried the adhesions and his gut just wont be able to be untangled. I have to have faith that these surgeons are miracle workers.. Jett has to get though this.. 89 days and counting...
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