Premmie Mums #9

Ladies, I'm really struggling being on here, seeing people happily pregnant, seeing people complain about their pregnancies when I'd love to be still healthy and preg... and birth announcements and it hurts so bad.

So if you need me feel free to pm me on fb I think I need a break. I will update my blog but I just need to get a handle on things its hard at the moment. Running up to the hospital, expressing, trying to sleep, trying to handle my bp meds and trying to eat and of course getting a grasp of the NICU and knowing and spending time with my little girl.

I hope to be back soon when I've got more of a handle on things.

Sent from my HTC Desire S using Tapatalk

Oh love, soon you'll be like me and not remember you ever had a normal life Lol.. Although hopefully 12wks down the track you'll be out with your little girl. I'll keep stalking your blog :)

I'm scared of january. Jett needs the op, can't move forward without it, but I'm scared they wont be able to do anything. That is the biggest risk of the op. They have no doubt he's strong enough, they think he's as well as he's going to get, but they are worried the adhesions and his gut just wont be able to be untangled. I have to have faith that these surgeons are miracle workers.. Jett has to get though this.. 89 days and counting...

When's Jetts op BAL? How's he doing? X

Sent from my HTC Desire S using Tapatalk

Thinking of you both Lys and BAL x Hoping Miss A and Mr J have a good day today.

Can't believe DS1 is nearly 5! 5 years ago and my pregnancy started to look better, the bleeding had eased right off and I was vomiting less frequently (only 1-2 times a day lol). The nausea etc was still there though. We had not long moved to a new town and were settling in well. I still think about the weeks leading up the Feb 10th (when my waters broke) thinking about what I had done and if I had caused it. I was still on at home bed rest so had done nothing at all strenuous.

Ah how time goes so quickly, yet so slow too.

I have been following your blog Lys, little miss A is doing well :)
Yay for a cuddle and a little suckle, that is awesome for both of you...it is such an amazing feeling :)
It is such a fine line with these tiny ones, the have to take blood each day for blood gases and they don't produce there own RBC means they have to do the transfusions...iron is not enough yet. Soon she will start to produce her own RBC and they will slow down on the blood gases so transfusion won't be necessary...that is when they start on iron. I brought both of mine home on it.
:hug:

BAL thinking of your and little J. I am putting lots of positive thoughts out there for his operation :hug:

It does go fast doesn't it EK.
My teeny tiny boy is two in 9 days. I went in for my emergency stitch this time two years ago. I left the hospital confident he was on lock down. A week later everything turned upside down and he was born way before he was ready.
It is quite emotional.
My little 35 weeker also turned 4 three days ago (going on 40 :lol:)
She starts kindy this year, I can't wait to get her uniform she is going to look so cute! :D

Awww RB she is going to look adorable!

When do these bradys and destats stop :( grr have to be Brady and destat free for 48hours before going home.

Sent on the move with Tapatalk.

Hugs hun
When the twins were in icu Lleyton took 2 weeks of being off all oxygen to stop his bradys but then he was destating heaps and put back on cpap thankfully not intubated again.
I hope you get home soon.
Do i even belong in this gtoup lol Anthony was 25 weeks but hes an angel now and the twins were 35 weekers in scn for 2 weeks then home til 7 weeks then in monach icu for 4 weeks

Sent from my GT-I9100 using Tapatalk

Hey everyone haven't been in here awhile....... So reintro have 4 kids, 3 premmies

Malachi is 7 was full term, taniesha is 5 was 35 weeks and 2.5kg no hospital time, hunter is 4 was 30 weeks at 1.5kg and serenity was 32weeks at 1.5 kg and is lil miss chatterbox sleeps on a big bed and gonna start toilet training soon :)

So just got a few bfp so not expected since we were using protection but what can you do, got get tubes tied after this one, just a little nervous about how far we will make it I guess but not stressing as of yet since it's still early day and were not telling anybody cos they will think were insane and yell at me

Hey Hun! Glad to see you! Congratulations. Am wishing you all the very best xx


Sent from my iPhone using Tapatalk - Sorry for any mistakes!

The light is at the end of the tunnel. Amelia just needs to stop the destats and Brady episodes and she's now off oxygen (day 3 off pbf) hoping the red writing clears in the next few days so I can bring my baby home.

Sent on the move with Tapatalk.

That's awesome news Lys! I have everything crossed for you. I found the last week to be the most frustrating. How much does she weigh now?

:

---

Hugs hun
When the twins were in icu Lleyton took 2 weeks of being off all oxygen to stop his bradys but then he was destating heaps and put back on cpap thankfully not intubated again.
I hope you get home soon.
Do i even belong in this gtoup lol Anthony was 25 weeks but hes an angel now and the twins were 35 weekers in scn for 2 weeks then home til 7 weeks then in monach icu for 4 weeks

Sent from my GT-I9100 using Tapatalk

---

Of course you belong!!! It's not about gestation, it's everything that goes with having a prem ;)

She's 2.8kgs now.

Her page just got redder... :( lots of destats and bradys all feed related. If they don't do something I'm gonna be peed off.

Sent on the move with Tapatalk.

How low are the desats going? Is she self resolving quickly? Try not to stress, everyone desats ;)

Ds1 desated and bradyd a lot with feeds, she will grow out of them, ask about the possibility of going home on a monitor.


Sent from my iPhone using Tapatalk - Sorry for any mistakes!

She destats usually to the mid 80s. Rarely below 79. Her bradys and destats r self resolving with no colour change.

Sent on the move with Tapatalk.

Do they know why she is desat & Brady during feeds?
My little DS2 used to desat because of reflux. I remember the monitor going off all the time & wondering why..... FX it gets less, soon.


Chris
DS1
DD
DS2
#4 due Sep

Reflux.she's on tfar (term formula anti reflux)

It helped initially but now, not as much.

Sent on the move with Tapatalk.

Anyone who wants to keep up with amelias journey... Link in my Sig.

Otherwise fb...

Need to say bye to bb

Sent on the move with Tapatalk.

oh lynsdan, please dont go!

i hope amelia is picking up for you and you get to take her home soon :hug: hun xx

:hug: hun x

I'm pleased they are all self resolving, that's a really good sign. Fingers crossed it isn't long now.

DS1 had reflux, which resolved around 14 months old. We tried AR formula, but it made him worse. We tried about 8 different formulas (gold and normal) and ended up staying with heinz nuture. It could just be as simple as a change in formula, however it most likely won't help the actual reflux but we found it did help with the pain associated with it. DS1 was in a lot less pain when he vomited up once he was on heinz nuture.

All the best hun x

Just booked my dating scan for next Wednesday, makes it seem almost real, I was not planning this or expecting it so I keep thinking maybe the tests were wrong, did another today to make sure and still bfp so hopefully it will sink in soonish


Sent from my iPhone with love <3

congratulations Serenity on your BFP! some things were just meant to be wern't they.

Lysdan - thinking of you & I hope Amelia's desates cease so she can get home with you soon xxx

I havent been in here for ages, but as of tomorrow i will be 33+3 wks with baby 3, which is the gestation ds1 was born.
I end up in hospital last week for 2 days after having headaches, nausea and contractions.... thankfully they stopped after being pumped with 4-5L of iv fluids. My bp has remained stable which is good. Ive had low platelets which keep dropping so keeping a close eye on that. ob appt is next tuesday. Ive been resting as much as possible with 2 other kids and a husband hardly home from work.....
this time last week. ds2 was born at 38wks so hoping i get FT again, but this time hasnt been without its hiccups.

Wow that must have been scary, my 35 weeker didnt need to got to the nursery so ur really close to that so fingers crossed you last a couple more weeks, if i make that i eill be very happy

Congratulations serenity!
The twins were 35 weekers and in scn for 2 weeks.
Lleyton was born with a pneumathorax which self resolved thankfully.
I know they werent too prem but due to size its been a rollercoaster that we are still aboard

Sent from my GT-I9100 using Tapatalk

congratulations serenity

well i had orientation for my new job yesterday. i didnt think they had a scn at the hospital so was surprised when we went for a tour and they do have one. they only take babies from 34 weeks tho. everyone else gets flown out. i thought i would be ok but i started having a huge panic attack in the nursery and i had to leave. i was almost in tears. came home and cried to DH about it. :(

Should i be concerned the boys are nearly 10 months and not sitting unless i put them into that position and that only lasts around 10 secs

Sent from my GT-I9100 using Tapatalk

Do you get follow up appointments for them, if not take them to your gp and if need be he can write a referral i honestly cant remember my youngest 2 milestones except that serenity was the slowest to walk at 15months and i cant see your sig on tapatalk so cant see how early etc they were

They were 5 weeks early but had s lot of complications.
Our last follow up was 5 months ago

Sent from my GT-I9100 using Tapatalk

Yeah i would go to the gp and see if hes worried, if so get a referral to a specialist, heres hoping theyre just taking there time and its nothing to worry about, i know how stressful it is when theyre behind in milestones

I would also look at a follow-up MrsS DS1 was about 10.5 months old when he first sat.

Teresa, :hug: It's hard seeing any scn :(

Had my scan today and was abit off with dates, i remembered af finished just before something major so though it was nye and had my edd at oct 1 turns out my edd is 19 sept so was like 2 weeks off , went in 8+2 came out 10 weeks lol....no helping some i guess, the only time ive ever recorded was when ttc S sooooo anyways 2 extra weeks i will gladly take :D

congratulations Serenity.

Mrs S, both my girls (both 34 weekers) only sat by them selves around 10 months. Each child reaches their milestones differently (as I am learning that again with DS who was born on his due date). If you have any inclings (sp) that he may be having issues get it follow it through with a Paed appointment, mummy instinct is almost always the best.

Woohoo serenity!!


Sent from my iPhone using Tapatalk - Sorry for any mistakes!

I hope these bradys and desats stop soon. I don't know how many more hospital runs I can take. We gave worked out that in amelias 85 days of life, there have only been 2 days I haven't been by her side. Day one, I was forced to stay in ASCU (adult special care unit same as ICU) and my gallbladder op.

Sent on the move with Tapatalk.

I hope things get better soon x

:hug: hun x

How is everyone?

Congrats BAL and LysnDan on having your precious bundles home!!!

Heaps of stuff happening around here, DS1 is doing great at Pre-Primary and DS2 has been diagnosed with Sensory Processing Disorder, he's an avoider where DS1 is a seeker... makes for an interesting household!

So amelia has been home now for just over 2 weeks.

We've been through our tough times with family who really won't co operate with rules we have set. Such as the no smoking around her and smokers wearing a smoking jacket etc. They just don't understand that her lungs and how underdeveloped they were... And the risk of SIDS is so high for Prems. Like we haven't got enough on our plate already.

We are supposed to be going to an engagement party tonight. I am so worried. Apparently both DH and my mil have said that she will be passed around all night. I don't want that happening at all so I'm tempted to not go at all. :( Gahh
Sent from my HTC Desire S using Tapatalk

Totally understand hun.... Can you put her in a sling for the night?

I hate how people think everything is fine now just because you've been discharged grrr


Sent from my iPhone using Tapatalk - Sorry for any mistakes!