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oh that annoys me so much! i think some people think that babies are there for them to just man handle grrr. i hated that when DS was so little :(
as for us, we decided this morning that in july after DH's 30th birthday we would revisit the idea of maybe ttc for #2. i am really worried that i will have all the same complications again and have another premmie but i guess we will just have to see what happens.
That scared me so much with DD.
My advice (I couldn't do this as I hadn't thought of it) is to put her in your Sleepy Wrap (or whatever brand you have) and keep her in that all night.
I totally get feeling like that. When DS2came home I told DS1 school teacher that I wanted DS1 to meet me at the car so I wouldn't have to take DS2 out. Also had the rule for smokers that they couldnt hold/breathe on him for at least 30-45 min after they had a ciggy. And DS2 was fairly healthy.:
To help others understand I got info posters from the hospital, so if anyone questioned me I'd give them the sheet of paper & "my doctor told me".
Best of luck with everything. FX your little miss stays healthy & grows stronger quickly. :)
I hated people thinking the twins were a special case and needed passing from one person to the next they are babies not toys!
Finally at 10.5 months old Jackson can sit unaided now just waiting to see when Lleyton does it.
Had a good appt with the respiritory team last week no more appts until the boys are 12 months. Although they werent patients the bi-weekly day trips were starting to really get to me.
I cant believe they are one soon - what a rollercoaster!
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So Milly got passed from one person to the other... :( I cracked it at DH because she hadn't had a sleep and she was out in the music, the cold, and being passed around.
I'm still mad at DH and won't speak to my mil because she was the one palming her off to people I didn't know, then keeping her awake. (i was the photographer for the engagement last night so I had left her in a warm room sleeping peacefully till DH and Mil pulled her out when I specifically told them no.
Sorry for the rambling. I'm soooooo MAD.
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I know the feeling. I'm so sorry, Lysn. :(
:hug:
:( hugs hun, I'd be ****ed too, especially as she was sleeping!
Hi Ladies, I'm just popping in to say hi and to subscribe to the thread! I am currently almost 26wks preg and due to medical reasons (I have half a uterus) my bubs will be a premmie baby. Not to sure when yet, we are hoping to get to 34wks!
Welcome mc_hope! I really hope you can get to 34 weeks+
Best of luck mc_hope! I'm pregnant also, with high risk of a prem as my last bub came 7 weeks early with no warning. Hoping this one behaves ( :) ) & stays put.
Chris
DS1
DD
DS2
#4 due Sep
Good luck, mc! Make sure you ask any questions, I'll be happy to answer the ones that i can. It's probably best to start organising a breast pump now if you are planning to breastfeed, just in case a SCN stay is required.
Just a quick vent from me: I had some random stranger come up and say how small Hannah is. I smiled politely and kept walking and then had a cry in the car.
I even had a premmie mum mention to me how small Hannah is for 15 months.
She's still in alot of 00s and is 8.1kg and 73cm tall. I'm so sick of being told how small she is. She's 15 months old. It's time for people to accept that she's a petite little muffin.
Happy things now: She's walking more and more. Today she has started standing up in the middle of the floor and is just walking for the sake of it. It's sooo cool!
Oh, one more bad thing: She's started pulling things off the bathroom vanity and can nearly reach the kitchen bench. Eeep.
::hugs:: Charlotte
If it makes you feel better I have a friend with a 12 month old that is only 8kg & she was full term.
People can be so mean sometimes.
Chris
DS1
DD
DS2
#4 due Sep
My DS1 is nearly 9. He was born at 34w due to IUGR and P/E. He weighed 1.9 kilos.
He's still just about the smallest kid in his class. But he certainly makes up for it with attitude. I'm sure all your premmies will be just the same.
welcome mc_hope and fingers crossed for you.
Everyone guesses how old the twins are everyone says 4-5 months though they are almost 11. They were 2.1 & 2.5kg at birth and just gone into 00 it drives me crazy people are they crawling yet? oh! they should be maybe you should get them checked ... people dont get full term bubs are VERY different
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Charlotte, Hannah is doing so well! Especially given everything she has been through.
DS1 is 5 and although underweight he is almost average in height, and he definitely has his own little personality and attitude.
This birthday was the first of his that I did not have a mental breakdown. Every year in the past I have almost ended up in the hospital from the stress, panic attacks, etc, from reliving his birth. This year *touches wood* he hasn't had any major issues and is thriving in school (considering his ASD, SPD, developmental delays, speech disorder, etc, etc). It really does get easier, it just might take a little while x
Feel like crap. DH is soothing amelia, finally got her quiet.
I couldn't even settle my own girl. :(
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Lysndan we all have days like that, even with my full-term bubs. Maybe do something for yourself that helps you relax & feel better (I love hot baths with a good book myself):
Plus side is daddy-daughter bonding time.
Chris
DS1
DD
DS2
#4 due Sep
Ive had those days even weeks with my own kids of all gestations.:
Did anyone elses prem have a pneumothorax?
Lleyton did then he got bronculitus and rsv and his lung collapsed.
Nobody will diagnose him til hes 18 months but he coughs a lot, wheezes and doesnt handle colder mornings very well. I feel helpless, hes so grumpy this morning and pale but nobody except the mchn listens
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Oh hun, we all have those days, I still do!!! Don't beat yourself up, you can't always do everything hun and sometimes bub makes it hard for us to figure out what's going on xx:
Thanks for the welcome ladies :)
charlotte91 - thank you. This is my first bubs, so loads of unknowns!! I am planning on breastfeeding and haven't been told much of what to expect yet, so thanks for the heads up on the pump! My midwife gave me a few reference sites and books to read on breastfeeding, but as yet my Ob or Midwife haven't really explained what to expect if bub's does come early! I am going in with a list of questions at my next appt, after doing my own 'research'.
Can I ask with what the sort of norm or timeframe is for premmie bubs? I've been reading that they like to keep them in up til their EDD and then I've read / been told that it depends on bubs and their weight gain and overall health...
DD was in hospital til just after her EDD. Which was nearly 7 weeks. But, she had alot of other issues.
My understanding is that yes, weight gain must be good and they must be on all 'suck feeds' for a few days.
If bubby comes early and has minimal sucking reflex then they may insert a NGT (naso-gastric tube) through the nose for feeds until bub is bigger.
We kept DDs very last NGT. The nurses were pretty grossed out by that. :)
My early bubs were in til 35.5 weeks and my bub at 35.5 weeks didnt stay in
14 weeks now yay second trimester
Sent from my iphone, so may not make sense
The twins were born at 35+2 and stayed in 15 days it was all to do with 24 hours of just suck feeds, no ngt top ups or feeds and they needed to weigh 2.5kg before they could be discharged which was a struggle as Js weight dropped to 1.7kg
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I kept the twins NGT from scn and the ones from ICU:
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DS was born at 34 weeks and he stayed in the scbu for 13 days. came home on b/f and top ups.
my advice is to go to a breastfeeding class now if you can or whilst you are in hospital. it will help you more then anything! i wish i had gone and now i recommend it to everyone.
Hi ladies
I'm now the proud mama of 2 very impatient boys - DS1 Blake born at 35+5 in 2007 and DS2 Liam at 33 weeks 7 days ago.
due to PROM.
I am struggling with the fact my bub is still in SCN. Blake was admitted for jaundice and a lazy suck but came home on day 7. We're at that point now with Liam but of course he is only 34 weeks corrected. He had Cpap for 20 hours, slight jaundice which is gone and monitors galore, which at all now off, it's just feeding that needs to happen. I'm expressing around the clock and my supply is good, and offering him ebm in a bottle, but he is just so sleepy and the most he has taken is 18ml of a 50ml per feed quota.
Does anyone have any tips on waking him up?
I look forward to getting to know you all.
He's so little at only 34 weeks. It's common for little ones to be sleepy.
Congratulations!!
Jackson took ages to get over the "sleepy" stage. How old is your little man now?
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Hi Ashlee, as others said at 34 weeks it's common for bub to be sleepy. My DS was born at 33+3weeks & best advice I got was from a NICU/SCBU nurse who said 'let him sleep it's when he does all his growing- better he grows sooner he will be home' After that I breast fed him when he woke by himself & NG fed him the other times- also if you learn the NG feed well some hospitals have an early release program (ask the dr & nurses)
Does your hospital have a PIPA (Preterm Infants Parents Association) support group. PIPA gave me a folder on the gestations & what was 'normal' helped me get through.
Best if luck! And may the hospital stay be short & uneventful!
Chris
DS1
DD
DS2
#4 due Sep
Oh & DS2 stayed in hospital for 18 days (would have been home sooner but had reflux that affected weight gain)
Talk with your Doctor about when your DS is likely to come home. Get them to keep communicating with you, so you have an idea what to expect.
Chris
DS1
DD
DS2
#4 due Sep
We were always told to aim for the due date for discharge, but that's only a guide it solely depends on how bub is doing. My 30 weeker was in for 6 weeks, we pushed for discharge. He was suck feeding for 48 hours and off monitors for 48 hours. He was only 2kg when we bought him home. My 34 weeker was only in NICU/SCN for 7 days before transferring back to the local hospital for a further 2 days then early discharge program where I had to take him back everyday until they were happy with him. However DS2 was 3kg at birth so he'd already met the weight requirement for our hospital. When DS1 (2007) was in KEMH we only had to reach 2kg for discharge to happen, they also had to be on all sucks feeds and off monitors for 48 hours and also maintaining temperature. With DS2 (2009) it was the same, the only thing holding us back was jaundice.
Ashlee, congrats hun x I agree with the others he's only a week old, he's putting his energy in to breathing etc. It will take a bit of time hun. :hug:
Holy crapola. Just some stats from miss A's discharge summary ..
Born 30.11.11 by c sec due to severe PE/IUGR/ AEDF (absent end diastolic flow)
Weight 850g
Height 33cms
Head Circumference 24cms
APGAR Scores 6 (1min), 7 (5 min), 9 (10min)
NICU time 61days
SCN time 31 days
Issues
Respiratory
Hyaline Membrane Disease (RDS)
Chronic lung disease / BPD
Apnoea of Prematurity
Management of Respiratory issues
-Supplimental oxygen (highest o2 concentration given was 45%)
Oxygen given for a total of 1681 hours.
-Ventilation for HMD (total hours 95h25m) self extubated.
-Nasal CPAP (total hours 1332hrs)
-2x doses of surfactant used first given ay 4hrs of age.
-caffeine given for 64days
-morphine
-immunisations
Cardiac issue of PDA managed by frusemide, saline volume expansion, pharmacologic treatment of PDA (ibuprofen) unable to complete course of ibuprofen due to renal impairement. Duct closed with time.
Haematological issues
-anaemia of prematurity (2xtop up transfusions given & on ferrous)
- jaundice (phototherapy used for 25hrs)
Neurological diagnosis
-Bilateral IVH grade 1
NO ROP
Infections
- septicaemia (coagulase neg staphylococcus at 11 days old ( course of abs benzylpenicillin, gentamicin & vancomycin)
-lumbar puncture
-crp was 48
Metabolic issue - lactic Acidocis
Gastro intestinal - GERD (reflux) colic, constipation, umbilical hernia.
Umbilical catheter for 89hours.
Parenatal Nutrition for 13days (TPN) NG tube feeds
Enteral feeding commenced 4.12.11 full enteral feeding achieved 14.12.11.
Discharge weight 3.644kgs
I knew lots happened, but whoaaaa. She's come a long way.
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wow lynsdan! little amelia has definately come a long way! you will certainly have a story to tell her when she is older!
She certainly did well :D Great APGAR scores too, DS1's were 2:4:4 and DS2's were 6:6:8 both ventilated at birth due to HMD/RDS. Little champions all of them :D
wow fantastic scores!
Jacksons were 2,4,7
Lleytons were 0,1 and his third wasnt done as he needed to be rushed to the air ambulance
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Those agpgars are great! DS2 was 4(1min) & 7(5min) they didn't do a 10 min as he was being hooked up to everything at the time. ;)
Well done Amelia & lysdan!
Yeah, she was a pretty good colour when she was born, and took her own first breath but struggled a bit just after birth. They only vented because they had to put surfactant down her lungs, but after they did that she developed BPD so they kept the vent in. Apparently its a risk of using the surfactant.
It was a very traumatic experience but honestly, if I had to do it all again, if I knew everything was going to be ok and she would survive and thrive like she has ... I'd do it again in a heartbeat.
*shhhh bit* lol...
I'm currently on the pill but we are looking to come off the pill (IF my BP returns to normal and my post birth issues sorted by then) after our holiday in March/April to "see what happens in the land of ttc" no temping, no charting, just no pressure really. It took clomid and monitored cycles to fall with Amelia. Although, with Zachy it happened naturally (but sadly was born sleeping)
Although I'm petrified of having another prem deep down. I know that I will be closely monitored next time, have growth scans more often etc. And I honestly wanted two babies earthside. I don't want Amelia to be an "only child"...
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I can understand why you are so scared of having another prem. Although Hannah wasn't as early as Amelia, I'm scared too.
Fingers crossed for you that everything 'happens' and goes smoothly.
xo
lynsdan - good luck with everything!
i can understand the whole being scared to have another prem. although DS was 34 weeks and really didnt need too much in the way of interventions when he was born, i am still petrified of having another baby prem! i know what to expect if i did but it doesnt make it any easier. especially now we live 5 hours between either melbourne or sydney and there is no NICU here :(
Lysdan I know how you feel.
Am currently 16weeks pregnant, & am also scared. There's a pretty high risk of this bub being prem, I'm scared that it will be too prem.
When you were discharged from hospital did they say much about the chances of you having another prem?
I'll have my fingers crossed for you. :)