Certain events often resulted in oxygen increase with DS. Things such as increased feeds, eye tests, additional blood tests and immunisation which they do at actual age and not corrected. Fluid retention also plays a big part in it too. Sometime it was also a flag for a well needed blood transfusion. Has Heidi also been spending time in air?
Thanks for your support Rosebud. Heidi was in air for the majority of her first 2-3 weeks which was amazing. Its only been this last week that they've seen her oxygen needs increase, and I do sincerely hope its just due to transient things like increasing her feeds etc. She also wiggles a lot so sometimes her de-saturation is simply due to a bad trace on the oximeter. She is always pink and lively though and they encourage us to look at her, not the monitors. Hard to do when they beep so much.

She stacked on 55 grams over the last 48 hours which is great - she is now 980g in total, so almost pushing the big 1kg milestone! I think I'll throw a party when she hits that one. She is taking 6mls of EBM each hour, still being perfused slowly which she is tolerating a lot better and she is pooing like a trooper now which is a good sign that her gut it kicking in.

I'm tired, got a million things to try and keep on top of, but I'm doing my best to get the important things done and just forget about the rest.