Thank you all for your love & support and helping us celebrate DDs milestones. She continues to do well and is definitely getting better which is an immense relief. They repeated the gastric dye test on Friday and she managed to pass it through much quicker which is a great sign, and she has also continued to poo which means things are on the mend. The real test will be today as they are re-introducing 1ml feeds every 2 hours. So we'll see how she tolerates that.
She was taken off the ventilator around midday yesterday and has remained nice & stable, so we are just thrilled for her. She was getting so uncomfortable with that tube down, she is looking a lot more settled now with just the CPAP back on. And after 3 weeks of not being able to handle her a lot or do much for her, I was able to give her a nice wash and massage today and it looks like we might be in for some cuddles tonight! DP thinks he might even sneak a cuddle in too - he's not felt ready to cuddle her as yet, but after this time with her being so ill, I don't think anything will stop him now.
Still expressing like a dairy queen - so much milk in my freezer here, I'm also giving some of it to DS! I've got a crack thats opened up on one boob right close to where the pump flange rubs, its not too uncomfortable if I'm really careful, but I just can't see how its going to heal while I'm exclusively expressing. Any thoughts? I'm putting breast milk on it to help heal it up and giving it an airing too? Hopefully it stays manageable.
So wonderful to hear how well she's going! for more poos and hope you get soem lovely cuddles
Hope the crack heals up. Are there LCs at the hospital you could ask about it? Or call the ABA maybe. Milk and airing should help at any rate.
Oh wow *Infinity* what some huge steps Miss Heidi has taken over the last few days
She is certainly making up for lost time.
I am so so excited for you and your DH to be getting cuddles again, oh what a truely amazing feeling that will be, and I bet you were bubbling with joy being able to do her cares today
Will be keeping you all in my thoughts and I hope that she gets back onto the "good stuff" and the transition goes smoothly
Take care and you are doing a wonderful job and thankyou for sharing what is a very difficult journey, we are here for you through all of the highs and the lows, but from here on in may there be many more highs!
xxoo
Hoping you all got your cuddle & a big WHOO HOO FOR POO!
Haven't been on for a couple of days, but as soon as I got computer access, logged on to find out what little Miss Heidi has been up to and was so excited to read your post. What an exhausting time for you all but happy to hear she that she seems to be on the mend
for more poos and hope you get soem lovely cuddles
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