the light at the end of the tunnel shines quite dimly sometimes
We were only in NICU for one day and then SCN for 2 weeks and at the time I felt like that was never going to end. I got talking to some of the mums in the expressing room who were NICU LTers and hearing the hurdles they overcame and were continuing to fight was such an inspiration to me.
You are also an inspiration... thank you again for your updates. I think of you often.
Heidi sounds like a little darling. Stay strong little one xoxox
1800g.... she has come such a long way, must be time for another party at 2kg
I hope she gets over this little hump quickly and starts to build up her strength again.
Being off CPAP is a huge step. I think Heidi will surprise us all and be home around her EDD.... She is such a fighter and doing so well.
Well we're back on the down side of the journey again. Unfortunately the NEC has returned. Her tummy worsened overnight and its definitely back. DP just rang me from the hospital after the doctors spoke to him, he was in tears. I'm at home, DS is sleeping. I'm cleaning, trying to keep my mind off things. We're unsure as to what the plan will be this time. They're going to try and establish an arterial line this morning. Thankfully they didn't remove the central line in her scalp - they left it in just in case. So they don't have to put her through that again. We'll find out more over the next few hours. I'll drop DS off to my sister so we can head down together. I dare say they'll want to ventilate her again to keep her safe. I just really don't know what to say or do right now. I'm kind of numb. I need to have a big vent - this shouldn't be happening. I should be pregnant with a big round belly. I shouldn't have had the privelidge of meeting her yet. I should be planning to birth my baby in the comfort of my own home. She should be nice & snug on the inside and not being put through all this awful, painful stuff. I just don't know anymore.
Oh Infinity I hear your pain and it is so unfair. You have been so strong when you probably just want to cry. She is a tough cookie and I'm hoping with some assistance she will quickly pull through this current rough patch and show you just how tough she is. You deserve more happiness right now, I hope you and your DP can keep it together for each other and your DS and DD. Much love and hugs xx
infinity, have been following ur journey. Just wanted to send you some love and strength.
Heidi is a strong little bugger and she will get through this latest set back.
i cant even begin to imagine how hard all this is to deal with.
Be strong, be positive, one day you'll have ur growing girl at home with you and this will all be a distant memory.
Will pray the NEC goes away as quickly as its come on
xxx
What a journey you are all on . I hope you get to spend as much precious time with Heidi and your DP as possible today, and that she recovers very quickly from this latest bout. Thinking of you xoxo
Keeping your family and Miss Heidi in my thoughts and prayers, my heart breaks to hear she has NEC again, it's not fair here for you hun for a hug, cry, vent, or just to listen.
Be strong Miss Heidi, we are all behind you little Miss, sending you all our strength and courage to fight this battle xxoo
the light at the end of the tunnel shines quite dimly sometimes
here for you hun for a hug, cry, vent, or just to listen.
xxoo
Bookmarks