So we begin our NICU journey....

[tk1999]

Infinity, it just isn't fair... sitting here in tears for you and just cannot imagine how you must be feeling. Please know what I wish I could give you a big bear hug.

Inanna has said what I feel so much better than I could have

[nickers]

poor little Heidi Im so sad she has to go through this fight again and it must be terribly draining and hard on you guys.
Sending her all the strength to push through and get back on track soon.

[Liviam]

Sending you all strength and hope. keeping you all in our prayers.

[*Infinity*]

What a shame to lose some of this thread....I was thinking of printing it out for DD to read when she's older to tell her how many people were cheering her on. Is there anyway to recover it? Oh well.

Heidi is going well, we're hoping at her weigh in tonight she'll hit the 2kg mark! What a milestone. She's breathing completely unassisted now, not even oxygen required and they've taken her chest leads off too so less monitoring! Her stomas are going beautifully and she's really looking like a different girl compared to the weeks where she was unwell. Its truly amazing. We had another great breastfeed today. They may also take her central line out this week and the next step will probably be an open cot when these bubs are doing well they move them quickly - a bit disconcerting for us but great for her. All steps closer to bringing her home.

[Cassius2]

this is amazing news infinity! and yeah, like total wow, on how fast they can improve and make leaps and bounds...so amazing.

i too that we can recover some stuff...lost the BA and birth story stuff from my end...bit sad. had grand plans of also printing it out for DD...

very very cool news on the BF front too BTW! i remember in the part of the thread that is lost that you had trouble with BF last time so this must be an extra special moment for you xx

[*Beema*]

Oh Wow *Infinity* isn't she a clever little girl, breathing completely unassisted, central line coming out and talk of an open cot, wow some very big milestones, and bring on the 2kg!!!!!
It can be overwhealming when it all happens at once as it can often do

I keep all my notifications so I have all the posts for this thread that I am more than happy to send through to you, so you can compile it all together and fill in the gaps, it just won't have the pretty Avvies and smilies. Hopefully there is a chance it can be recovered

Take care xxoo

[HotI]

What wonderful news! This was the first thread i thought of when i knew data had been lost. Would be great if we could piece it back together. One of the other threads said something about being able to find lost posts on google by using the thread title.

So great that Heidi is feeling better and looking stronger.

[Nai]

That is fantastic Infinity!! She is such a little fighter - I'm sure she will be home with you all soon.

[thepixie]

That is beautiful news Infinity!! Breathing on her own and nearly 2kg!! Must be time for another cake and party!

[JennaJayen]

That is such wonderful news Infinity!
Heidi is doing such a great job!

[Jennifer13]

That's such fantastic news, Infinity!!

How exciting will it be to see her in a proper cot for the first time. Well done to everything you've done to get her this far, and to the drs and nurses who've done their best with her as well.

[Amity]

September 2, 9:50pm
Heidi has had a restful day today and she is recovering well. Still on morpheine for pain relief so she's fairly drowsy but still managing to wriggle around and respond to us.

I'm wrecked, no other words for it right now so I'm off to bed.

September 4, 11:04am

DD is still going well, nice & stable and recovering nicely from the op on Wednesday. She is still ventilated and they have weaned her off the morpheine today so she may come of the ventilator shortly too which will be great for her. Once she gets more alert & active when the pain relief finishes, she is not going to like that tube down her neck!

Well I afforeded myself a sleep in yesterday which I desperately needed but back to the around the clock pumping today. The only way I can sleep longer is if someone else is in the house to watch DS while I pump and shower and get ready in the morning. Otherwise I have to be up super early & get it all done before he wakes. Arrrrgggggh. DP is working for about the next 5 days so my stress levels are at the max right now, I think I'm about to have a meltdown. I don't have any baby sitters around - my family are all either working or away for the weekend. And of course it means I cant get down to see DD which is really stressing me out. She needs me, I need her. And DS is unwell again too so he's miserable. I just feel like screaming & crying. I'm trying my best to suck it up and keep my mind & hands occupied. DP will be home later, that's what I keep telling myself.

Sorry these are the only two I can rescue for you honey.

Thinking of you and hoping someone can rescue some more for you. Hugs.

[Sally2]

Clever little girl Miss Heidi! Here's hoping that she's turned the corner now and is well on the road to coming home to her Mummy, Daddy & big brother! It all sounds really wonderful!

[*Beema*]

*Infinity* I have got a copy of all of the parts of the thread that were lost over the past couple of weeks, so you will have all the precious memories to show the beautiful Miss Heid when she grows up

Thinking of you and hoping you have had many wonderful cuddles BF's and precious time with your little girl
Take care xxoo

[shazzi]

Wow Infinity. Her weight gain is great and I hope she hit the big 2kg at the weigh in. Talk of moving to an open cot soon is brilliant. When they get growing, boy do they go fast. I was really anxious when they moved DD to an open cot, and then even more nervous when they took off all monitors just before coming home. I think we get very medicalised coming out of NICU and SC. Well done on the continuing breastfeeding. I used to think that each breast feed is a step closer to home. So happy to hear it is going so well.

[*Infinity*]

A great big shout out to thank the darling *Beema* for retrieving all the posts we lost from this thread. Honey, with everything you are going through right now - you are seriously an angel to find all those posts for me. I truly appreciate it so much, DD will love seeing how many people were cheering her on from BB.

And we've hit the 2kg milestone! She went to 2020g and then up another 60g to 2080g overnight! Way to go baby girl. I can't take all the credit though from EBM....she is having some artifical milk at the moment but for very good reasons. Her gut is quite sensitive and irritable after the infection & surgery and she also has some liver issues after being on IV nutrition for longer than normal. All this results in an inability for her body to produce the right enzymes to break down the sugars in milk so she's having a special formula which allows her to absorb & digest things (and grow!) a lot better. Half formula, half EBM so she's stilll getting my good stuff.

The took her central line out too so the only thing she has attached to her is her oximeter which measures oxygen saturation and is on her little foot. So getting her out of the isolette for cuddles is so easy now....no scary lines to worry about. Still in a closed cot but I think they're just playing it very safe for a while...there is really no need to rush her and she still has a way to go before going to Special Care (Level 2).

I had no baby sitters around today and DP is working....almost had a meltdown about not seeing her this morning so packed DS up and took him to the hospital and put him into the playroom they have there....and he loved it. I've felt so guilty all this time about even thinking about putting him in there but I had a great chat to the lady running it and she was very reassuring. So now if I desperately need to get there I feel better about him being comfortable in the playroom. So many toys! And lovely staff running it too.

We're up to day 85 today. But we have more and more glimmers of hope every single day. I can now see that there will be an end in sight, somewhere. A few weeks ago I just couldn't see the wood from the trees as they say. Thank you all for your ongoing love & support. It means a lot.

[UntoldAngel]

Infinity I'm soo glad to hear Heidi is powering on soo strongly still, she is a very special little girl xx

[Jennifer13]

Woohoo on such a fabulous weight!!! My DD was 2.56 kg at birth, so your tiny little fighter is getting much, much closer to the size of a small term baby.

Glad to hear your DS liked the playroom, that would sure be a great option to have when you need it.

I bet that light at the end is getting a bit brighter each day now. What's the next goal for little Heidi? The open cot?