Wow Infinity. Her weight gain is great and I hope she hit the big 2kg at the weigh in. Talk of moving to an open cot soon is brilliant. When they get growing, boy do they go fast. I was really anxious when they moved DD to an open cot, and then even more nervous when they took off all monitors just before coming home. I think we get very medicalised coming out of NICU and SC. Well done on the continuing breastfeeding. I used to think that each breast feed is a step closer to home. So happy to hear it is going so well.
A great big shout out to thank the darling *Beema* for retrieving all the posts we lost from this thread. Honey, with everything you are going through right now - you are seriously an angel to find all those posts for me. I truly appreciate it so much, DD will love seeing how many people were cheering her on from BB.
And we've hit the 2kg milestone! She went to 2020g and then up another 60g to 2080g overnight! Way to go baby girl. I can't take all the credit though from EBM....she is having some artifical milk at the moment but for very good reasons. Her gut is quite sensitive and irritable after the infection & surgery and she also has some liver issues after being on IV nutrition for longer than normal. All this results in an inability for her body to produce the right enzymes to break down the sugars in milk so she's having a special formula which allows her to absorb & digest things (and grow!) a lot better. Half formula, half EBM so she's stilll getting my good stuff.
The took her central line out too so the only thing she has attached to her is her oximeter which measures oxygen saturation and is on her little foot. So getting her out of the isolette for cuddles is so easy now....no scary lines to worry about. Still in a closed cot but I think they're just playing it very safe for a while...there is really no need to rush her and she still has a way to go before going to Special Care (Level 2).
I had no baby sitters around today and DP is working....almost had a meltdown about not seeing her this morning so packed DS up and took him to the hospital and put him into the playroom they have there....and he loved it. I've felt so guilty all this time about even thinking about putting him in there but I had a great chat to the lady running it and she was very reassuring. So now if I desperately need to get there I feel better about him being comfortable in the playroom. So many toys! And lovely staff running it too.
We're up to day 85 today. But we have more and more glimmers of hope every single day. I can now see that there will be an end in sight, somewhere. A few weeks ago I just couldn't see the wood from the trees as they say. Thank you all for your ongoing love & support. It means a lot.
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