So relieved to hear she's come out of it so well. You'll still be in my thoughts and prayers as she recovers (and her hair grows back!). I hope you get some rest as well. Sounds like it's truly been a marathon for Mummy.
What another big day! It sounds like she is so strong and doing so well to have come out of the surgery with no set backs, ie. great respiration etc. I can't wait till you are all home together. Take care of yourself and rest
Wow Infinity she has done amazingly well! You must all be shattered though, it is so much to go through
Hoping for a very calm wind down in the home strait.... through SCN and home where she belongs at last.
Hope the weekend has gone well and you've been able to use more of that precious EBM now. Is Heidi out of NICU this week, or will she stay in for a little while?
to you, this has been a long, long road and you must be exhausted.
It sounded like you were close to 'letting it all out' in your previous post. It sounds like you finally feel free to consider your own feelings and you have had so much to deal with in the last four months.
Poor Heidi, so hungry and no Mummy's milk to fix it. I hope that things are improved with the extra feeds, but how good is it that she was being so demanding so quickly?! She's certainly letting everyone know what she wants.
It really shows how much strength she has gained over the many months and I am certain it's due to her Mummy's Milk I am just thrilled to hear how well she has bounced back from the surgery. I hope the rest of her recovery continues smoothly and she is going to be that much closer to those dooors out of the SCN and home very very soon.
You have all been through some very difficult lows and some truely amazing highs, I will never forget reading about your first cuddles, BF's and putting her in her own clothes.
DDs post-op recovery is going really well. Today she has ceased her antibiotics & morphiene and apparently overnight she has been farting like a trooper LOL which is a great sign the gut has woken up again. Apparently if the bowel is handled is shuts down, so they need to give it time for the normal peristalsis to recommence. They can hear lots of bowel sounds too. She has re-started feeds this afternoon - a whole 15mls! But its really just to test that everything is functioning ok and if so they'll start to grade her up to full feeds over the next 2-3 days. Poor little chicken was getting very hungry. I alsmot got her back on EBM but the surgeon came in and over-ruled the paed this morning. She wants her to establish full feeds again on the elemental formula she was having prior to surgery and then start re-introducing breast milk. I'm disappointed but not surprised. And I just don't have the energy to weigh into a debate with them - I'll let them fight it out at their level. Realistically she'll be breastfeeding & on EBM again in the next week so why should I push it just for the sake of it now? The surgeon's reasoning has sound logic to it so its not like they're feeding me BS, its just hard when she's not having my EBM. More of an emotional thing for me I think.
Typically, the central line they put in her scalp post-op tissued so they removed that and got another one in her left arm on Friday. Fingers crossed that holds for the next few days as she needs to stay on IV nutrition until she's back on full feeds. Nothing like a trip back to NICU to remind you just how 'intensive' it all really is.
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