You have had such a long journey and I now it's still ongoing. But it is great that you are seeing so much progress I am sure that you appreciate the little things even more now. Best of luck with seeing the ENT earlier, and with the dietician and CHN.

All these medical appointments must be very tiring for you. How long as it been since you've had a week without a medical appointment of some sort? I hope that things settle down soon for you.