A bit of a rough patch for a while - my arthritis drugs trashed my liver and I'm now no longer allowed to take them. I had three weeks of misery where I just got worse every day. Every day I'd think that this would have to be the worst it could possibly be, only to find out I was wrong the next day. But after three weeks I got approval to start a new drug, and for the first time since Sam was born I actually have hope that the arthritis can be controlled and another child is looking more and more possible - assuming we can ever find the money to go back to IVF. It's a fortnightly injection and I had a day's relief after the first dose, then three days after the second dose. I have another week to go before my third dose, but the bad bits between doses are nowhere near as bad as before, so I'm finally feeling good about things!
The sensory disorder sounds quite full on, but it seems you have got onto things early, which will certainly help!
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