Hi All,
I wasn't sure what area I should post this in so I'm sorry if I'm in the wrong spot!
I was 12wks on Tuesday with my third preganacy (I have a beautiful, perfect & healthy 23mnths old & m/c in june this yr), yesterday (Wed19th) I had my 12 wk Ultrasound and baby was active and everything fine, when it was almost finished I noticed that they guy doing it (Brendon) was focusing alot on the feet and was poking my tummy to make baby more, I asked if there was a problem and he said I just need to see something.
Ok so I'm not going to write every detail of what happened cause i'd be here forever but the short of it is....Dr came in to have a look and did an internal ultrasound and they have told me that both of my babies legs aren't growing properly and its some sore of bone problem.
The bone from hip to knee is fine and good size but then from knee to feet is too small and baby isn't stretching like it should be, not kicking or anything.
So there conclusion at this stage is that they will not grow in proportion with the rest my baby's body and it will not walk.
Of course at this stage DH and i both broke down (and may i add that i haven't stopped crying since).
They have told me to go back in 3wks when I'm 15wks and they're going to do another heap of scans in hoping that they will see things more clearly as they baby gets bigger, but they're pretty much said thats how it is and now its our decision at to what we do next, they're told us to think about what our thoughts are on special needs babies/children etc.
This is going to be the longest 3wks what of my life, but I just feel so upset and in a way disappointed, obviously not towards my baby, but its just so hard to come to terms with that heartbreaking news, its one of those things that u don't think will ever happen to u.
So sorry its long I just needed to get it off my chest, when i m/c earlier this yr i posted on here and the support i rec'd was amazing and something i will never forget.
If anyone has heard of anything similar to my case I would love the here good or babd.
Thanks everyone for listening.
WBM, Oh you poor thing! What a horrible situation to be in. I am so sorry for you both. I will pray that they are wrong and your next scan will show that everything is ok.
Allow yourself to grieve hun. SN kids although they take a lot of work are so special and they teach us to much about ourselves. Even with all the extra work I would not give up my mildly SN child for the world hun.
Oh WBM - that is really scary and sad for you. It is also a horrible way to find out such news and I am sure the next 3 wks will be hard for you. Did they offer some counselling?
Big hugs and you will get lots of support on here. xxx
I had a similar sort of experience to you. Not with the bone growth worry, but a different kind of scare. But same thing - 12 week scan was where it was discovered and we had to endure 4wks of waiting until a 16wk scan to confirm if something was wrong.
We too were asked to "consider our options" and we were terrified out of our minds.
DH and I spent lots of time talking together, talking with family (sort of) and a lot of time in prayer.
You need to do what works best for you in this situation - we found that a lot of our friends and even some family could not comprehend the decisions we were facing. Invasive tests that run the risk of miscarriage and a life changing decision. What do you do? We found a lot of people just didn't understand.
I know my situation is a little bit different but the waiting is still the same. I found work the hardest - I wasn't too busy and I had a lot of time when I could sit and think. Thinking was bad!
Sending you lots of - and keeping you in my thoughts.
Hi ,
I am sorry for your bad news but Hun don't panic now....My daughter was born with Sacral Agenesis she is missing her spine from the bottom of the rib cage down. she has nothing nadda zip there. My daught has no butt muslces you stand a frog on it's back legs and that is my daughters torso.
She can't pee or poo by herself she has to cath herself 6 times a day.
We were told she would never walk she couldn't servive past 18mth etc.
But you want to know something, Heather walks she may not run but she damn well tries and she will be 7 years old next may.
She also had talipes on both feet and has frozen feet that can't move at all.
PROVE THEM WRONG, If we had have given up and did what the dr told us to do we wouldn't have our little spitfire.
Our problem is genetic so they say 50/50 each pregnancy I have 4 kids and she is the only one so far.
Please don't give up on yourselves and your child, They get their strengh from you if you beleive it can be done then damn fire it will be done.
Best wishes and if you need advice let me know I have been there kick them if you know what I mean.
I have a mate who was born with sacral agenesis. She is 35 years plus, has been a world class athlete, holds a couple of degrees and is currently completing her PhD while teaching at university and is a great mate.
WBM- I haven't posted but i've still been following. You are so incredibly brave and i hope you realise just how strong and amazing you really are. I cant imagine, i can only offer support .
Hi Kate,
Do you think your friend would mind contacting me regarding her condition etc as Heather is one of a very few with spinal loss from t1, They honestly didn't know what to expect with her so we are taking one day at a time.
Heather can walk for a limited time and is now getting her first custom made wheel chair PINK of all colours......lol She is very small she weighs in at 12.5kg and is 89cm high.
But what she lacks in body parts she makes up with her mind she is in the top 2% of her class and is very bright.
I think this child is going to go far in her education as she has a never say die attitude.
Heather doesn't see herself as different and is treated like any other child.
We went through a DIVA stage last year when she started school as everyone wanted to help her do things so she just sat back and lapped it all up.
I kicked that in the butt you get nothing in this life for free.
So if there is anyway you could contact your friend and if she has the time. I would love to talk to her about how she coped growing up and her linits if any on what she can do.
Scared & SOoooo Confused!!!
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WBM
Tough ones eh!
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