very high NT measurement-helpless, lost and tortured

[Gigi]

i had a similar scare wongbaby, it's awful, waiting for the results.

i had a urgent phone call from the hospital on a Friday afternoon, telling me i HAD to have an urgent amniocentsis test on Monday morning, as the NT scan showed a 1 in 6 chance of Downs.

The weekend went so slowly
I had the test - the idiot specialist, inbetween giving me a consult and actually performing the amnio, decided (without telling me) to OMIT the anesethetic. I will never forget that.

you have to wait two weeks for the test results
when i went in to get the results, the specialist was "on holidays" but no-one had told me

god that was the longest two weeks.
i felt like i was going mad, so even though it was irrational, i went shopping for cot - that sort of baby stuff - looking in the classifieds and visiting people's houses with baby stuff for sale - it kept my mind a bit occupied. i felt i HAD to do something POSITIVE about the baby.

it is SUCH a hard time, the waiting.

the amnio test came back clear. there is a chance of miscarry, just by having the test itself. i was later told, the NT result was false.

it was an enormous stress, going thru the testing.

I can understand your reluctance to tell your parents, what's going on.

I hope your baby is ok wongbaby, enormous hugs to you.

[wongbaby]

Gigi I just hope the hospital could be effecient to book me into a CVS as soon as early next week. Hopefully it is tommorrow I could get the phone call. Then there will be the long waiting period. Cant image how I could handle the stress. But this is life.Isn't it? My emotions can easily break down.

[melbel]

You can pay an extra $200ish dollars to have the FISH testing done when you have the CVS.....this will give initial results for the five main chromosomes in about 24 hours. That will lessen the waiting time for the down syndrome results at least...if the FISH testing comes back clear it is highly unlikely there will be anything wrong with the other chromosomes...make sure that they explain all this to you wen you see them hun.....

[EsJay]

i have been there too, mine was what showed up in my blood test though, not the fold itself, so it was slightly different.
but i had good results too, perfect little girl.
big hugs to you at this difficult time. its a very hard thing to go through. i hope you get booked in asap

[wongbaby]

thanks girls

I am still waiting for the call, but not as desperate as before. After two sleepless nights, last night I actually had a good sleep although lots of dreams. I am still suffering from nausea. My husband went to work today. I will try my best to handle my emotions and worries.

I hope I could be strong. Not only for me but aslo for my baby. ~~~~~

[wongbaby]

I have just came back from CVS. The procedure went well and only lasted a few minutes. The nutual folder is still thick. The only thing I can do now is waiting for the fish result. I hope this time luck could be at my side and I will do anything to change for the health of my baby.

[Gigi]

i'm glad the CVS procedure went well, (i had five days of really bad cramps after my amnio).

all fingers and toes crossed for you wongbaby, i hope you have stuff to keep you busy, it's maddening, you know thinking about it will make the time drag, but it's SO HARD to think of anything else.

best of luck sweetie

[wongbaby]

Thanks Gigi

I am now madly searching on the Internet hoping for some positive stories. But the more I read, the more scared I am. It seems a very little chance for a high measurement turned out to be normal. I wish I had normal measurement abnormal blood work instead I feel so helpless. ~~~~~

[wongbaby]

yes, melbel, I will definitely pay the extra money and get the fast result.