Talia - I have a close friend & my MIL who both birthed a baby with Trisomy 13. It is not compatible with life, but both made it to term.
My friends DD lived for 6 days & MIL's DS for about 3 days.
Neither of them knew til birth. My friend was young & didn't seek medical care very early, I think thats why she didn't know.
My MIL never went back to her doctor again, because from his physical appearance it should've been picked up on an u/s, but she was not told in any way that something may be wrong.
I just want to wish you well. I really don't know what I'd do in your situation. Can they do a normal u/s now & see if they can see any markers for problems now, before you decide what to do?
Talia - In July this year I was given a 1 in 4 chance of having a baby with Trisomy 13. After much questioning we decided that we needed to know the answer outright as we had made a decision that we would not be able to proceed with our pregnancy if this outcome was not favourable. I chose to have the CVS procedure and my doctor was very experienced and also a gentle person who made me feel very relaxed. That was my main concern that the person doing the procedure had lots of experience and it was definately a bonus that he was a nice person too as I was a wreck that day. I think that I would definately have this procedure done again as I feel that in the right hands the risk of miscarriage is lower than the statistics state. However there is still a chance. If you need to know and you will be unsettled and anxious for the rest of your pregnancy without the procedure then I would definately suggest having the CVS. However this is just my opinion and as the others have said only you and your DH can make that decision. Good luck and I hope everything goes well for you.
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