Have just spent the time reading all your posts;
Im so sorry for all that you are going through. It must be so much to deal with and then to have the added option of a termination. Of course you dont want your baby to suffer.
Sending you all the strength to make the right decision for your family!
Went to see the specialists on Monday and finally some very very good news. Bubs had a major growth spurt that the doctors were not expecting. They still did all the tests for dwarfism, which all came back fine. So now we are back to they don't really know whats going on. But they are fairly confident she doesnt have dwarfism and that her condition isnt fatal.
The options now consist of either IUGR (lol... back there again) or a rare genetic "syndrome", which according to the genetist could range from quite severe to virtually unnoticeable (basically she doesnt know either and is taking a bet each way)
They also took another look at her heart and although she still has a coarctation of the aorta, they were unable to see any other problems with her heart. Which means one surgery soon after birth and all should be well.
The blood flow to placenta and to the baby also looked quite good, so they have changed their minds about having to induce early and are now talking about me making it to term and going into labour naturally.
And last but not least they were all so happy with the results that I have been dropped down to ultrasounds every 3-4 weeks rather than weekly.
Given the news we were expecting to hear, my husband and I are over the moon. I feel like I can finally relax for the first time in months and start really preparing for the baby that will be here sooner than I think.
That is the most wonderful news. I can't imagine what the last few weeks have been like. I am so happy and relieved for you. I hope it's all smooth sailing from here and that you & DH finally are able to enjoy the pregnancy and preparations.
that is fantastic news i have had 2 babys with IUGR one was worse then the other the first one we nearly lost him as no one knew i had it so at least they can moniter you and watch how the blood flows and how the baby is growing but good luck with all of it
Sezza- I have been reading up on what you have been and are going thru with your pgcy. I am sorry you have had a hard time of it, and I am praying that your little girl shows the Dr's just how perfect she really is.
I had a hard time of it last yr with my pgcy and was so stressed out the whole way thru. It didnt seem to let up at all. Once I had my little V the stress still kept coming, even tho my beautiful little V is doing everything she is supposed to, it was more the Dr's trying to say there is something wrong with her. They have done u/s's on her for her kidneys, heart once she was born and she is fine apart from a small echogenic focus on her heart that I was told is just like a freckle on your face but it is on her heart. It isnt affecting the functioning of her heart whatsoever. So really all is fine. They did chromosome testing while I was pgnt with her, and did karyotypes on her once she was born, and even went to the extent of checking my oldest DS who by the way is perfectly fine, as he has similar features to V and all came back fine. They have been trying to find something wrong, and I keep telling them she is fine. V when she was born came out with a V mark on her forehead, this is her V for Victory mark, she was born little 2.38kg and I am hoping when she gets weighed by the pead in the next month that she will be over 5kgs at 7mths.
She is the most happy baby, always full of smiles. I am just so inlove with her.
I hope your little one comes out with her V for victory mark too, just to show these DR's that she is a fighter and is just perfect, healthy, just like my V.
I hope the rest of your pgcy is the time for you to enjoy your pgcy and you are able to look forward to your beautiful little baby girl's arrival.
Senior Moderator
Reply With Quote
Bookmarks