thread: Low PAPP-A Results after Nuchal Translucency Scan

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  1. #1
    Registered User

    Feb 2009
    75

    Hi alexsandra,

    I know exactly how you are feeling. But I am pleased to tell you that you should stop worrying! I started this thread wanting to hear about the pregnancy outcome of people with low PAPP-A. My little girl was 2.78kg (6 pounds 3 ounces) when she was born (via elective caesarean at 39 weeks) and is now 4 months old and in the 75th percentile for size. I actually posted a thread today wondering if she was growing too fast - oh the things we worry about. She had no trouble after she was born and has gone from strength to strength. She is a happy and healthy baby, and touch wood she stays that way. Try to enjoy the rest of your pregnancy, a little baby doesn't mean they are unhealthy in any way.

    Emma

    and by the way, your low PAPP-A score isn't as low as mine was.

  2. #2
    Registered User

    Dec 2009
    sydney
    76

    Hi Emma,

    thanks so much for your reply, im glad to hear your little girl is doing great! it was just a shock to get the results, we were not expecting to hear anything like that.

    The scan was perfectly fine but then they give you your blood work and it all changes and thats when you start thinking the worst. I almost wish i never had the combined blood test and just did the scan, the stress that has come with it is almost not worth it.

    Im just glad to hear others in the same situation have done well which gives me hope that all will be well for me too.

    Thanks again hope everything continues to go well for you and your little girl

  3. #3
    Registered User

    Feb 2009
    75

    Hi,

    Bridee, just wondering how things are going with your Little Holly. I was just thinking today how bizarre it was that we both had low papp-a, SUA and called our gorgeous girls Holly!
    My litlle Holly is going really well. She now weighs over 7kg! She is still a bit short though at 61cm and so there are some awesome fat rolls on her!
    Just thought I'd see what your little Holly is up to. My Holly loves to sit up and play and coo, but still totally hates tummy time!
    Keep in touch,
    Emma

  4. #4
    Registered User

    Jan 2010
    Northern Illinois
    3

    hi ladies,

    i am so glad to find this thread. i have very much enjoyed hearing about everyone's experience with the low papp-a.

    i am having quite the week here...very low papp-a blood test lead me to do an amniocentesis on tuesday. however, in addition to all that, i am having the complication of amniotic fluid leak from the amnio. i had a lot of fluid rush out on wednesday afternoon, and went into the OB office for a scan. still enough fluid and baby was ok, but put on bedrest. not much more has leaked out, no fever, so i am hopeful that that will heal.

    i am still resting and anxiously awaiting my FISH results to rule out downs.

  5. #5
    Registered User

    Feb 2009
    75

    Hi Karen,

    What a crappy week you've had! Is this your first baby? Fingers crossed for you that everything goes as planned.
    Keep your hopes up, my low papp-a baby is healthy and happy (and quite fat now!) so hopefully it is just a number to you, as it was to us.

    Emma

  6. #6
    Registered User

    Jan 2010
    Northern Illinois
    3

    Hi Emma--yes this is my first at age 33.

  7. #7
    Registered User

    Feb 2009
    Moody Melbourne
    213

    Hi all -

    Just thought I'd reiterate to those who stumble across this thread the importance of speaking with your care provider about the potential complications of a Low Papp-A score just so you can be prepared.

    I too was told I had a low score at my 12 week scan and the only information that I was provided with was that it could be a marker for Downs. At my 20 week scan, conducted by the same Specialist, nothing out of the ordinary was mentioned nor was I told to be potentially concerned about anything.

    My son arrived at 32+6, weighing 1.33 kg and I endured the first 2 1/2 hours of my 4 hour labour at home as I had no clue as to what was going since I was unaware of the possibility of my delivering early.

    I am lucky, in many ways, that both of us came out of the process relatively okay, but it was through no help from any special precautions or monitoring throughout my pregnancy. Just a sheer miracle I think.

    So my advice would be to be arm yourself with as much information as possible and ensure your care provider(s) take you seriously. And are aware of your score - as once it was determined that my son didn't have any discernible genetic abnormalities, the score was never mentioned again.

    Not to freak anyone out, but I felt I had to say something in this thread as I would be devastated if anyone went through what I went through because someone in the medical community dropped the ball like they did with me.

    S xo