Sorry for this late reply, yes my littlest DD has only one fuctioning kidney!! Issus first picked up at the 12 week US with a higher neck measurement Downs was intially suspected, but amino cleared and abnormality so with trepidation we headed to our 20 week scan expecting a heart defect, only to find instead 1 good kidney and one filled with cysts..at that scan there was a little function, by the 30 week scan there appeared to be none. A paed team was present as soon as she was born but she was in great cond so they allowed her to stay with me and then was taken for quick checks approx 15 minutes and then we got her back and did all the normal things. When she was 10 days old she had extensive testing which showed no function in her kidney which is actually better than a limited function, eg: no high blood pressure, no surgery to try and retain some type of function, she is now 10 months old and I rarely think about her cond..she is my biggest baby off the chart for length a good weight, no feeding issues, perhaps drinks slightly less? no UTI's and delevloping normally. Due for an US and paed appointment in a couple of months to see what is happening..the cysts continue to grow and her belly is slightly enlarged, we intend to encourage as healthy a lifestyle as possible (as with our other kids, we drink water, juice is a treat rarely happens and soft drink is a party drink and then they often ask for water?)we still want her to participate in sports etc (maybe not foooty!!!)
wishing you the best of luck, hope you see thsi.