Thanks to everyone for replying, nothing much has been happening just been doing alot of research about downs and what is going to happen if our little bub has downs. still abit shocked about the whole thing but i think i am starting to get my head around it.
take care xxoo
A friend of mine had a 1 in 10 risk of DS, as you can imagine she was pretty panicked but she had the Amnio and everything was fine so you could easily be too with that risk.
My risk with my last pg after the nuchal tests etc was 1:850 and the ob wanted me to have an amnio. I asked him the risk of losing a healthy pg because of an amnio and he said 1:400, I said I know which risk I would rather take thanks!
You need to weigh up the risks of whatever you decide to do and also make an informed decision about what you would do if it came back positive for downs.
Like everyone else has said, the odds are still pretty low so there is a very strong possibility that your precious little baby will be just fine.
for what its worth though my nephew has downs, they didn't even know he had it until he was almost 12 months old! He is now almost 2 and walking, running and playing like any other 2yo boy, his main delay is with speech but they have been told this will come in time and it's nothing worth stressing about at this stage.
I understand this must be a very scary time but try to relax and enjoy your pregnancy.
BellyBelly Life Member - Love all your MCN friends
Jun 2004
The Festival State
3,008
i had my Nuchal Scan and thought nothing of it, then got a scarey phone call from the hospital, telling me, "you have to come in immed for an emergency amnio" - because i had a 1 in 6 chance of having a baby with Downs Syndrome. I was over 35 at time of conception. ANyhoo, i had the amnio, stupid specialist consulted me beforehand, saying he WOULD use an local anasethetic, but when he actually did the procedure, he DIDN"T use the local anasethetic afterall (without saying anything to me), so i was in ALOT of pain (screaming). So my advice is, IF you do have the amnio, DO INSIST on the anesethetic. I had five days of cramps after the procedure.
after all that. two weeks of the longest waiting (so it seemed at the time).
no one rang me with results
i went into the hospital
"You can't have the results, that specialist is on holidays"
i am virtually in tears at that point, so anxious to find out
random nurse takes pity on me, goes and rustles up the results
ALL CLEAR
turned out Nuchal Scan test was innaccurately taken or something like that.
so all that stress for nothing.
had a healthy baby.
my risk was one in six
there is a risk associated with the CVS test
there is a risk associated with the amnio
i feel for you, i felt so anxious at the time, i coudln't even think straight to read brochures etc about the risks.
best of luck with whatever you decide to do. i would speak to a few medical people, get a few opinions. Make sure you understand the percentages - i found that so confusing. Actually someone who was really good at maths, helped me "get" that. they put it differently than the medicos did. less scary.
My Angels - I tend to do a lot of reading when I get worried. sometimes it helps and sometimes it just winds me up even more. Having a baby has all sorts of risks but also has great odds that everything will be OK and sounds like you are being a real Mum already... concerned right from the start. Did you decide to have CVS or amnio?
Hi everyone, i have decided to go ahead with the amnio im booked in 2 weeks so i am just waiting and worrying. i have been doing looks of study on ds and if there are not big problems like bubs has whole in heart and wont last very long we are going to go ahead with pregnancy. i think one way then i go the other its just so hard knowing what is the right thing to do.
with the amnio how painful is it and how long do u need off work?
thanks to everyone it helps people giving me advise and just understanding what is happening. xxoo
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