Leanne firstly big for you. I understand completely the shock and heartache and grief you must be feeling. My little one was diagnosed with left ventricle hyplasia (sp?) and pulmonary artery stenosis. His case was considered very severe, with very little chance of survival. He also had major VSDs and ASDs (holes in his heart). We too were offered the option of termination. We declined. He had an operation to widen his pulmonary artery on day 3 after he was born, and had open heart surgery to repair the holes when he was 3 months old. He is now a healthy and happy almost-5 year old, and I thank God for each and every precious day I get to spend with him.

It's important to allow yourself to feel the shock, denial, anger, and other feelings associated with news like this, and talk about how you're feeling with your partner. As you think of questions, write them down so you can take your list to the cardiologist when you have your scan (often we tend to forget stuff when we're under a bit of stress).

I'd be happy to talk more about my experiences if you'd like. All the best Leanne.