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Thread: My nephew in trouble

  1. #1
    spreckemily Guest

    Exclamation My nephew in trouble

    Both my sister and myself are pregnant. She just had her 20w scan and apparently her little boy has a condition where there is lung tissue outside the lungs. This is causing one lung to not develop and is causing strain on the heart by pushing everything.
    Has anybody heard of this??? They are talking of doing a CSection in 2 - 3 weeks if the tissue has not died off. They have booked the NICU. I feel guilty that I am having a healthy baby, also happy that I am having a healthy baby and sad that my new nephew could die.



    HELP!!!!!

  2. #2

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    I am afraid I can't help you with your question as I have never heard of it before. Hopefully someone on here will be able to help you. I just wanted to send you a cyber and to say please do not feel guilty that you are having a healthy baby also i hope everything will be ok with your nephew. How far along is your sister??

  3. #3
    spreckemily Guest

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    My sister is 20 weeks. I talked with her today and she is going through phases of weeping. It really tears me apart.

    From what I understand the condition is rare. The specialist at the Royal has only ever seen one other instance of this in his career.

  4. #4

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    Oh, I just feel so bad for you both... here I am carrying on about having to get another scan to get a better look, and here your sister is facing this. I am soooo sorry.

    I have never heard of this, is there anything they can do to save him?

    Biggest hugs to you both...

  5. #5

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    Oh you poor thing! I hope everything goes ok for your sister and her baby. Good luck and dont feel bad.

  6. #6

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    your poor sister....I hope everything goes ok, thinking of you both.

  7. #7
    spreckemily Guest

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    She has been back to see her OB. They will be checking the little man every week for the next 2 - 3 weeks. If the tissue dies off or reduces, they will keep monitoring it. Otherwise they will send her over to Melbourne to have the baby via CS.

    Worse still her relationship with the baby's father is breaking down. He seems to think that because she is crying and upset about the baby that she needs a psychiatrist!!!

    I admit she probably needs a counsellor, but that reall makes me mad. He wouldn't even take time off from work to take her to her specialist appts, even though my husband offered to work for him (He owns a service station).

    Our mum has been taking time off work to be there for my Sis!!

    Sorry for the rant. Thanks for all the good wishes everybody. Will keep in touch.

  8. #8

    Default

    Oh sweety big hugs for you. I hope that everything goes well with your sister. I know you'll be sending her lots of love. I know it's hard but try not to feel bad about having a healthy baby, because there is absolutely nothing wrong with that it is great news, it's just so sad to hear that your sister is going through this.
    I'd be upset at your sis partner if I was you too, especially because your DH offered to help out to make him supporting your sis possible.
    Best wishes for your sister, you and your family while going through this tough time.

    Love

  9. #9

    Default

    That great your sister's OB is going to be checking on bub every week for the next 2-3 weeks. Grr @ her partner not bein as supportive as he should be. By the sounds f it she is very lucky to have you as a sister and your mum to be there for her. Sometimes men just don't understand how us women are feeling. I really hope everything will be ok with your nephew. I am thinking of you, your sister and her little boy.

    Take Care

  10. #10
    spreckemily Guest

    Red face

    The prognosis is still not good.

    Basically, my sister will have to go over to Melbourne for a month before the baby is born in case they need to get him out quickly. They will operate straight away probably, depending on the size of the mass. They have also suggested that she might like to think about taking him over to America to see specialists there....

    Unfortunately they are still only giving him a 50/50 chance of surviving

    Her partner seems to have settled down now. Taking more time off work and spending time with her. :eek:

    Thank you to everybody's good wishes. Will keep you all posted as things develop.

  11. #11

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    Awww hugs to you and your family hun. I'm so sorry that there still is no good news. DO they mean take him to America after he is born or before and give birth over there? How would he survive the trip if it were to happen? Sorry questions I shouldn't be asking.

    Good to hear that her DH is being more supportive too. Maybe he just didn't understand how serious it was, or didn't want to admit it.

  12. #12

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    Aww your poor sister. My thoughts are with her and your little nephew. Glad to hear her partner is being more attentitive to her. I really hope everything will be ok. By the sounds of it he is a little fighter.

  13. #13

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    awwww big hugs for you and your sister, how sad for you all, I am thinking of you and your sister and hoping with all of my heart that her little man will be ok, I wish there were something I could do or say to make things better for your sister
    you are both in my thoughts

  14. #14
    spreckemily Guest

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    Trish, I think they mean after the baby is born that my sister might like to think about taking him over. I don't know how old he should be.

  15. #15
    spreckemily Guest

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    Update

    My sister had a 3d US. Apparently it is now classified as a tumour and it has gotten bigger. On the good side the baby has gotten bigger too. Apparently the tumour has an artery leading to it and is supplying it with blood. An operation in utero in this case has NEVER been done before, so they would rather wait and they want the baby to go over term. Here's hoping??????


  16. #16

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    Sorry to hear more bad news. Fingers crossed your little nephew can stay strong and grow big so that he can undergo this op when he is born.

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