I'm struggling to remember through the blur and haze of sleep deprivation and work commitments.... but DS had a soft marker for 'something more serious'. I think it was Downs. At 20 weeks an u/s revealed that our DS had unilateral talipes (originally diagnosed as bilateral, both feet) or the common name is clubfoot. Apparently it can be linked with more serious conditions, such as cerebal palsy and downs (from memory.. )
The tertiary scan revealed nothing more except a very cute looking foot in 3D. I don't like the word deformity or disability, especially when used as a label for my child. I see it more as a challenge designed to be conquered. Other than his inability to walk, he's a normal kid. Feisty, but normal. I remember that feeling of sitting in the social workers office and being told about all the scary things we and our baby would have to endure. Surgery, bracing..... physio.... I was afraid. I still am sometimes when I look into the near future and his approaching surgery.
Most of my fear surrounds my own ability to cope with the challenges. Self-doubt will be your biggest enemy. Luckily, it sounds like you have very little. You know what you do and don't want to know. Your theory was so far proven correct... that extra information means extra worry. Trust yourself and everything will be ok. Now, I'm going to re-read this and see if I can take my own advice.
edit: When I say he can't walk I mean until he has corrective surgery. This is not a life sentence! Didn't want to freak you out.
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