TTC after partial molar pregnancy

khkjz

Woohoo for your levels coming down to normal - that's great news!
I'm still waiting for my results to find out if I had a molar or not.
I think getting a second opinion is a good idea, but at the same time, don't be in too much of a hurry to ttc again. If they're recommending you wait, then I'd go with it.

That's what I'd do.

hkjhjkgjhg

Hi josijo,

I just thought I'd share what I've been told, now that I have my results. I'm on weekly blood tests for 10 weeks, then will cut back to monthly (which will be around my b'day - yaaaay!) If, within 6 months, I get three consecutive "zeroes", then we can start ttc 6 months from date of d & c.

Hope you find that helpful :)

jkhjkhjk

Yeah, that's through the EPAU at the Mater.

First result 811!:dance:

So I'm living Wednesday to Wednesday at the moment, which I think will make time flyyyyyy.

Snugglybean - wishing you an even lower number for your blood test tomorrow! Good luck!!!!

Thanks so much!
Find out the number tomorrow, which means I am useless until then - can't think of anything else!

119. Doesn't suck, 15 days after d & c.

So, life is back to normal til next Wednesday.

What a fantastic drop in numbers Sungglybean. Yay!!!!

Today's result: 27!

I am so OVER the blood tests though... can't wait to cut back to monthly.

Snugglybean - that's great - you are dropping very quickly. I hope this means you don't have to wait too long to start TTC again.

January at the earliest.

I'm OK with that as long as I don't think too much about the age gap there will be between my friends' kids and this baby, or my nephew and this baby. When I think about that, that's when I start to get really sad.

I wish they'd go a bit quicker....

mbmnbnm

Oh, that is the best news! I felt so under pressure when I read how fantastically quickly yours had dropped, but I am so excited to hear that yours were the same!

Did you end up getting a second opinion? How did you go?

In other fabulous news on my end, I have plugged some dates into FF, just to keep an eye on things (I swear I use it more when not TTC:rolleyes:) as I had three days post d & c bleeding, then 2 days off, then some more AF like bleeding that went for 8 days. I was really unsure what was going on, but assumed it was just normal bleeding. Anyway, have had some interesting CM the last few days, then today some ovary pain, so I checked it out, and the dates correspond with normal cycles, if the second lot of bleeding was AF and the ovary pain meant ovulation. So, as far as I can tell, looks like it's business as usual in my reproductive tract - woohoo! :dance:

Hi ladies, I hope you don't mind me popping in here. I was just doing some research on the wait time on molar pregnancy myself, and your thread popped up. I haven't been able to find any thread like this on any of the other sites I frequent. I found out at my 2 month ultrasound back in May that I had a molar pregnancy. After the D&C, we found out that it was a complete mole. Totally devastated, as I'm sure you're well aware. Anyways, our doctor has recommended waiting 6 to 7 months once my levels went down to "normal." I, like you, am so glad that the weekly blood draws are over, and now I have my first monthly one coming up this Friday. But I've been wondering what the reasoning was behind waiting the 6 months, or even a year like some women have to wait. Do either of you know??? I'm really interested to know why 6 months is the "magic" number? Why not just 3 months? Anyways, if you have a clue as to the answer to this, that would be awesome. Either way, I wish you the best in your wait. I'm so sorry that this had to happen to us. Since it's been almost 3 months since the d&c now, I've really come to terms with things. However, I feel the saying "time heals all" is not really true. They should say "time heals all, but not all the way," as I'm still really sad this had to happen, and am extremely sad that we can't try again right away.

Snugglybean - did you have another blood test today?

I just had my first monthly test - and got mangled! Will call for the result tomorrow but am sure all will be ok. My AF came again after 28 days - they have been so regular after d&c.

Our second opinion didn't happen!The doctor's office was so disorganised and we were really mucked around with the appointment. DH and I decided that we wouldn't want to see that obs for a whole pregnancy! So I have an appointment with a gyno (but not an obs) in a couple of weeks.

Ash - M - I'm sorry that you had to find yourself here. A molar pregnancy is tough! I would not wish it on my worst enemy.

The reason that you are told to wait is that because the abnormal cells caused by the mole might grow back and those abnormal cells emit HCG. So if you have a new pregnancy the HCG can mask any molar tissue. I think six months is pretty much the Australian standard for waiting - i.e. if the tissue is going to grow back it'll do it in the first six months. I think that's just where they draw the line - not that it's necessarily magic :p But there is some interesting research from the Royal Women's Hospital in Melbourne and they say that is you have a normal hormone level within two months of a complete mole you can start trying to get pregnant without waiting. For a partial molar their advice is pretty much the same but doesn't mention the timeframe, just achieving normal hormone levels and a normal period.

I tried to talk about that with my obs and he would not enter into any debate! He told me that I would have to wait six months after zero - end of conversation! But my research has indicated that in the UK that if you achieve a normal hormone level within 56 days of a partial mole you can try again 6 months after d&c, rather than 6 months from zero. Not sure what they say about complete moles.

There just doesn't seem to be any worldwide standard on waiting time for molar pregs. But it does seem that the monitoring periods are getting shorter, mainly because the shorter the monitoring period, the greater chance that you'll stick with the blood tests.

There is a great UK based website on molar pregnancy and they have a forum. I don't think I can post you a link, but I hope you are able to find it. I joined up and found out loads about molar pregs.

hi there, sorry to but in, it just good to finaly find a forum about molar pregnancies.im sorry to hear of you loss. I found out back in april on my 12 week scan that i had a molar pregnancy, i was devostated all i've wanted is a baby. i have been having weekly blood test for 4 months now i am so over it. They were finally going down and now they have started to go up i am a little worried. Im sorry to blabber on just glad to find people that i can talk to that understand what im going through. hope all your tests are going well.

petina

Hey there ladies! Great to have some new faces in the "mole patrol"! :rofl:

Josijo I had anothe blood test yesterday and got mangled too - I even gave her my good vein in my preferred arm, despite her being completely rude. First of all for questioning the Dr for ordering weekly b-hCG on a rule 3 exemption, not my problem, and I'd put money on her not even knowing what a molar is, and then she was really rude to the two students she had with her, she treated them like they were really stupid.
Then she started to carry on about taking blood with a syringe rather than a vacutainer, and how it was so much gentler. And proceeded to collapse my vein. A bit giggleworthy.

Anyway, loooong story short, got the results back and it's ELEVEN!:dance: Not quite the single figures I was hoping for, but pretty good. I've decided that when I get my zero, I'm going to put all my numbers together on a lottery ticket!

petina I hope your levels start to go down soon. I am so so SO over weekly tests (this little thread makes it a bit more bearable) and I'm only up to week 4!

So, I had another test today, pushed back because of the public holiday. I'd been out at the races yesterday, so was worried that the vacutainer would pull out pure champagne! :lol:
But it didn't. I got a.... FOUR point NINE! :leap:

DH built a prediction model about my levels (it's what he does...:rolleyes:) and it had said 5, so he is stoked that he got it right. I wonder what it will say for next week!

Great progess...but how do you pick 4.9 on a lottery ticket...is that a 5? you know our list - choc, soft cheese, wine...this morning I realized I can add back poached eggs - another yummy food you can eat at the moment

OMG - poached eggs! I'm actually vegan, so soft cheese isn't ont he list, but lately I've been thinking *just one poached egg* I think I'm gonna do it.

I was thinking, with lotto numbers, I will put them all together, like 811119271149, then pull out the numbers from there. But 11 appears twice! New lucky number... although did NOT win at the races on Wed! That said, yesterday I was walking home and found $20 on the footpath.

Might use it to take DH out for brekkie over the weekend and get my poached eggy!

Tested today, got a 3.1
Doesn't fit the prediction model, was supposed to be 2! But whatever.

That's very close to ZERO!!

Yeah :D Close enough, I reckon!

Hbnbx

Well, once I got under 5, they started giving me decimal places. So that's cool. I think I have two more weeklies? Or is it one?

Might be a bit fuzzy after the knock to the head on Tuesday :redface: Massive bike stack...

Hi Snugglybean,

How's your head and how are your numbers?

Josi

I went down to 3.1 and then 1.5. Have been way too busy to post lately!

The numbers are good. But going for the bloods is still getting me down. Nobody seems to get it - they ask how my results are, then expect me to be thrilled with the results, which I'm not. I'm sick of getting them, sick of even finding them out.

I know, it could be so much worse, in so many ways. But I should still be allowed a bit of a whinge!

jhjkhjk

I am DONE with weekly testing! Yahoooo! Got my three undetectables in a row. Supposed to have four more monthly tests, but have told clinic I am blowing off the last one - we will be in Japan when I should be getting it, and I don't fancy waiting another cycle til we can TTC.

Considering that if we lived in certain other states of Australia, we'd be given the OK already, I think that's reasonable :)

Hi Girls
I was so glad to find your discussion here - the first time I have thought about any positive side to not being pregnant. I'd like to add smoked salmon and sleeping on my tummy to the list!

I had a miscarriage and d&c while I was on holidays in Ireland in August - horrible thing. was even more upset to find out a few weeks later that it was a PMP and we have to wait at least another 6 months to try again. Although I'm relieved that it wasn't worse (complete or invasive mole).

I've only had 2 blood tests so far due to the delay in communication and got a 9 and a 5. My OB said 5 was as good as zero and wants me to have one more weekly test, then monthly. She said wait 6 months from d&c so one month down and 5 to go. don't know how i'll get there other than thinking about all those beautiful women who won't ever have another chance.

hoping your lottery numbers are looking good!
tac

Hey tac, I'm sorry to hear that you're joining us moles. It's a hard road. That's great that your ob was happy with 5 - as you'd have read, I had to wait for a 1.5!

I felt really strange on Thursday last week - at work all day I was just antsy, couldn't work out why (it was my birthday, and I thought that was it) but worked out later it was because it was my first Thursday without a blood test to kick off the morning.

So, the Womens in Melbourne reckon if you get your zero within 56 days of d & c, then that's your all-clear. DH heard this and decided that Victorians (he is one, and incredibly biased!) know much better than Queenslanders, and that we should start TTC now. BUT we have booked our trip to Japan for the year's end, and I am not missing out on the skiing and general other dangerous fun things we are going to do because I am pg. So we will wait.

ETA: I haven't done my lottery ticket yet - I actually don't even know how to play it! Will find someone to help me work it out...

hi everyone
last night i had a rare fillet steak which was great. i really hate my steak well done so basically didn't eat any while i was pregnant. so i guess that's another thing to add to the list!

my test last week came back less than 2. my OB said that was negative and i can go to monthly tests now so that's good. i am seeing her in 10 days anyway for a post d&c ultrasound to make sure everything's clear so hopefully we can talk more about the whole PMP thing then. i have found it hard to pin her down which is frustrating - she seems to be indicating that this is nothing to worry about but 6 months waiting is a big deal to me at 34 years old!:wall:

anyway a ski trip to Japan sounds great. not sure if we'll achieve that with our toddler but maybe i'll try to do some scuba diving over the summer to keep me feeling positive.

hoping everyone's numbers are still on the way down.:grouphug:
tac

Hey tac, how awesome that your numbers are down! We're all sub-2 and on monthly tests now.

We should have a zero party :lol:

My next test is on Friday. First monthly. I think the monthly tests might be harder to handle than the weeklies - weekly tests were just sort of built into my routine, and it was all still a bit recent. Now though, I am so OVER it, and there's hardly any point, I know it's going to be zero, and I just resent that time taken out of my week.

Scuba diving sounds good - have you done much? I haven't been for ages, so reluctant to just pick up and go, but would love to squeeze it in just once before the end of the year.

So sorry to hear of your PMP ladies.
I also had a partial mole late May this year, and had a D&C June 6th.
Im from Victoria and im 22 yrs old. I have a 2 year old as well.
I was 12 weeks when I went for my 1st scan to only find out that my little angel had stopped growing at 9 weeks 6 days, with no heart beat. That was the worst feeling I have ever felt in my life, my heart sank to the floor, I felt so dead inside, I know a bit dramatic, but that?s what it felt like. After the D&C they sent the tissue away, they didn?t know I had a partial molar when they done the ultra sound.

I was registered to the royal women?s hospital & they took care of me, they said I had to do weekly 24hr urine specimens (4 of them), and then a blood test. It was negative, they said all I had to do was have a normal period and then I was ok to TTC, and because I already had 2 normal periods we started TTC.
2 months later and im pregnant.
im currently 5 weeks 6 days pregnant, (6 weeks tomorrow) going off my last missed period, which was on the 27th of august.

Im going for my 1st scan on the 19th of OCT, then have a follow up GP appointment on the 22nd of OCT, ill be 7 weeks and 4 days by then.
I will post how I go. I hope everyone is well with you all.
Take care.

I did my first monthly test on Friday. In the afternoon at 4:30pm. STUPID thing to do, as I then had to wait until Monday for the result and spent the whole weekend convincing myself that something was wrong. Which it wasn't.
So, clinic nurse was really nice (I have returned my patient survey since last I spoke to her, don't know if that helps) and said that if we want to start TTC in Japan, then that would be OK, as long as I get two mroe zeroes before then. Two more tests! Yahoo!

hey girls
snugglybean that's great news about zeroes and ttc soon. hope you have a fantastic time in Japan.

cj's mum - how did you go with your scans? all my bits crossed for the all clear for you.

i don't know about you guys but i just constantly feel so sad about the miscarriage, the pmp and the waiting. i'm 35 in february so my clock is ticking so loud i feel like every day that passes is tragically lost forever and bringing me that much closer to risks of complications. maybe i wouldn't mind if i was 25 or 30 and still had lots of safe years, but i was hoping to have the flexibility of even more kids after the next one if we wanted them. sadly my OB didn't seem to understand this at my last visit and basically told me to buck up and she had 4 miscarriages and now has 4 kids blah blah.

anyway sorry to have a whinge i just thought you girls would probably be the only ones who would understand. maybe i'm just premenstrual! :redface:

have a great weekend all

tac

So, I'm back on the TTC wagon! With where I'm at in my cycle, next [last] monthly test would be before anything would show up if I was pg, so we've decided sod it and let's go for it. I could have gone either way on it, but DH was really keen.
How are you ladies going?

my scan went good (my 7 week one) i go for another scan on thursday. my new due sate as of the last scan is now 10th of june 2010. ill update with the news so there is hope. good luck to u ladies, hope ttc this month works for u