thread: Advice?? TTC after anenecephaly loss..mixed opinions from drs

  1. #1
    Registered User

    Dec 2008
    nsw
    718

    Question Advice?? TTC after anenecephaly loss..mixed opinions from drs

    Hi,
    At my NT scan at 13 weeks i found out we lost our baby at 11 weeks and it had a form of anencephaly. I had a D&C, my cycle back to normal, ovulated this month as well so waiting for 2nd AF to come after op. Now i am on 5 mg folate and have been since the D&C on 10th July, i have had 2 different obs/specialists, 1 said i could try after a month, 1 said to wait 3. I don't know what to do, we really want to try next month but would shoot ourselves if we didn't give me time for folate to build up and it happened again. Although deep down if it did happen again i really think it would be genetic and we would have to go down that road!! Although i thought you wee'd out what you didn;t need of folate, so how long can it really take to build up??
    Has anyone been in this situation and if so, what were you told?? Starting to stress about making a decision as to if we should TTC next month as AF should be here friday. Thanks in advance for any opinions xx

  2. #2
    Registered User

    Dec 2008
    nsw
    718



    or anyone after a ntd loss?

    xx

  3. #3

    Oct 2005
    A Nestle Free Zone... What about YOU?
    5,374

    Sparkles I am so sorry for your loss...

    It can take a number of weeks to build folate stores - if it were me I would wait at least another cycle. Did you have your folate level done? Do you know you were depleted?
    It is also important to take B6 & B12 supplements with your folate - this helps to utilise best your folate. So keep that in mind also.

    I hope the time goes quickly for you and that soon you have your Earth Baby...

    Fly safely Baby Sparkles...

  4. #4
    Registered User
    Add Rach75 on Facebook

    Oct 2005
    Moura, QLD, Australia
    3,754

    Oh sweetie I am so sorry to hear you had to go thru this my Katy wasn't diagnosed with annecephaly until our 20 week scan and due to the fact she was failing to thrive and I was extremely unwell we induced a week later

    ok with Katy I beleive the cause of her annecephaly was due to me conceiving before 12 mths after methotrextrate injection...so my story may be different...

    but I was told to wait 3 cycles and to take 5mg folate...I have also been adviced to stay on 5mg folate for as long as I still get AF, so for years.. some new drs question this but I think its better safe than sorry...

    I know the pain of waiting etc, but in the long run if it means you can avoid the same thing happening then a small break wont seem so bad

    if you ever want to chat feel free to PM me

  5. #5
    Registered User

    Dec 2008
    nsw
    718

    Thanks for your replies.

    Flowerchild - no i didn't get my levels done, i questioned a few times and they said there was no real need. I was already on normal preg. vitamins for 6 months prior to falling pregnant and during the pregnancy. Have now been on 5mg folate for 8 weeks and also b12 & b6.I just have this line up of vitmans sitting on my kitchen counter
    Rach - i can't even begin to imagine how that must have been for you, my heart breaks for you!!
    My doc also said to take 5mg folate forever, after my d&c when he came to see me, i asked him how long i would take it for and he said something like the next 45,697 days... The specialist from the foetal medicine unit beleives i was just unlucky, due to my age and no family history, so fingers crossed i will have a happy story to tell such as your little Jack and the new bundle you're expecting soon.

    I think we will wait the extra month, i just hate it when docs don't give you a clear answer. As when i questioned them both as to what to do if my period did not come back regular etc. after the d&c, they both said well then you'll be coming back to see us cause it means you'll be pregnant. And i was like but aren't i supposed to be actively trying NOT to get pregnant and all they do is smile & shrug?? Anyway i know only myself and DH can make the decision but thanks for your advice & opinions.

  6. #6
    Registered User
    Add Rach75 on Facebook

    Oct 2005
    Moura, QLD, Australia
    3,754

    best of luck