thread: Vulvar vestibular syndrome (TMI) and dumb GP

  1. #1
    BellyBelly Member

    Dec 2005
    3,130

    Vulvar vestibular syndrome (TMI) and dumb GP

    i just had a GP 'diagnose' this in me. which i dont think i have. firstly, after an examination (in which the speculum shot out twice- dont think she put it in properly) she looked up in a medical reference book ( which in itself doesnt give me much confidence in her) and said its vestibular syndrome. some of the symptoms i have do fit but some dont. she went on to explain all these treatments.. one of which was giving anti-depresents and epilepsy medication to difuse 'pain' signals. WHAT THE!!!!! i dont want anti-ds or epilepsy medication!

    she gave me a script for lignocaine ( a numbing gel) and when i took it to the chemist it wasnt a perscription medicine but over the counter. i am beginning to think this GP doesnt know what she is doing or talking about.

    my symptoms are stinging with intercourse and the stinging becomes really bad when the semen touches the area. (near opening near episiotomy area). this syndrome she is talking about is when a light touch registers with pain receptors so things that shouldnt be painful are. so painful intercourse etc. when i asked her about the semen touching the area symptom she said well its the feel of the fluid touching the area and registering as pain. that doesnt make sense to me!

    also i have stinging with urination (sometimes) and this doesnt add up with this syndrome.

    i am annoyed because i worked myself up for this appointment knowing i would have to take my dacks off AGAIN and then i get this bull **** diagnosis. now i have to go see another doctor!

    anyone have this syndrome i would love to hear from you and your experiences/symptoms so i can see if i think i do have it. but i really dont think i do!

    thanks for reading.

  2. #2
    Registered User
    Follow Pandora On Twitter

    Jan 2005
    cowtown
    8,276

    lignocaine is what sm33 is, that i use for DS2s teething gel.

    I would go an see another doctor is you arent happy. Even if it did turn out to be the what the first doctor has said you will feel a lot better about a diagnosis if you feel that the GP knows what they are on about, and is able to give you a decent explanation.

    after DS1 I had a lot of pain at the begining, my GP prescribed a hormone/estrogen cream and i only had to use it twice and the pain stopped, but it does sound slightly different.

  3. #3
    BellyBelly Life Subscriber

    Feb 2006
    melbourne
    11,462

    hun, id maybe try and get a referal to a ob/gyn rather than seeing another GP.
    topical lignocaine wont do anything for the pain im afraid.

  4. #4
    BellyBelly Member

    Dec 2005
    3,130

    olive, are you speaking from experience there? this GP said if it doesnt work she will refer me to a gyno which sounds like a good idea to me at least a gyno will know what they are talking about hey. thing is, would have to be in the public system so its gonna take FOREVER!

  5. #5
    Registered User

    Aug 2006
    On the other side of this screen!!!
    11,129

    Don't fluff around with the GP any more, just insist on a referral to the gyno, ASAP. My GF finally got a diagnosis of VV after years of pain/chronic infections, etc. Saw a gyno, had a tiny little operation, and it was better immediately. I'm not sure whether there were other treatments available to her but she is very happy now (and so is her DH ), just annoyed I think at how long it took to get a diagnosis in the first place.

  6. #6
    Registered User

    Oct 2008
    SA
    1,078

    Hollo,

    Sorry to hear you're going through this. I second what the others have said and try and see a gyno as soon as you can. When I was getting similar issues investigated I also saw a physiotherapist that specialised in women's health & pelvic floor issues and she was great. These conditions aren't very well understood I found so its hard to find people that really understand what you're talking about.

    Doctors also tried to prescribe me anti-depressents which I refused to take. And none of the creams worked for me. PM me if you want more info. Some of the symptoms sounds like VV but they could also be something else related to your episiotomy or something else again? You need to see someone who specialises in this area.

    Good luck