I'm freaking out a little and i just need to post to get it out there.
Ds had a blood test (he had it as part of his autism diagnosis) and it came back with a low immuniglobin (IgM) level. It was rechecked because the Dr. thought it was probably a clinical mistake as ds looks happy and healthy. But the test has come back again as low IgM and now the dr. wants ds to see an immunologist I have been googling like crazy and when i type in 'low IgM' there are scary words like cancer and lukemia popping up. I know i shouldn't freak myself out but i'm really scared its something bad. There is a LOT of cancer in my family on both sides. My dad died of cancer and his mum (my nanna) died of lukemia. My mum had a brain tumor (not malignant thank God) and her mum (my gran) died from complications of liver cancer. So you can see why i'm scared
I guess i'm just wondering if there is anyone out there who knows someone or experienced low IgM and it turned out to be ok?? The dr.s receptionist is taking her time getting back to me, she's typing up the referal for the immunologist so i really don't know whats going on
Thanks Anna.
Heard back from the Dr.s today and they've refered ds to an immuno specialist at Children's hospital at westmead. He has an appointment in 3 weeks. I'm happy that things are happening now but i'm so so scared that something is really wrong I know i'm torturing myself but everything i read is saying either allergies or leukemia. I pray its just allergies. I'm worried that ds's dr. is sending us to sydney because its bad news... there is a local immunologist here but he didn't refer us to him, obviously he thinks its serious enough to send us all the way to sydney...then again the local immunologist might not specialise in children..not sure.
Its just so scary and now i have to wait 3 more weeks to get some answers.
How stressful! I hope you can manage to keep your imagination in check, I find the unknowns way harder than fact. I just wanted to wish you a quick few weeks and whilst it may seem difficult at least knowing about this will help rather than finding out later on. I have fingers and toes crossed it is all simple and straight forward for you all. xx
What were they testing for? Please don't take google as gospel. You will always find worst case scenario on there which just freaks you out. The immunologist will be able to explain things further. If it was something very serious I'm pretty sure there would have been other indications and your doctor would have done further investigations rather than just let you wait for an appointment. Low IgM on it's own is not a determining factor for cancer etc. Sending you huge hugs though. You can't help but worry as a mum xx
Last edited by Mad Scientist; March 1st, 2010 at 11:18 AM.
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