Can you trust the hospital to tell the truth?

[JellyBean]

Oh Kaylee - you poor thing.

I guess if it were me in your situation I would be a little skeptical too - I think that's only natural. I don't know much about the protocol regarding autopsy, but if it were me, I guess I would be seeking a way to have an autopsy done by an independent 3rd party.
However, I would advise against doing anything which is going to cause you more stress and heartache.
I can only pray that you receive the truth that you are looking for and that your heart heals with time.

XX

[kaylee]

I dont want any more stress or anxiety either. I guess what I am asking is how can I find someone who will be an advocate for me now and in a future pregnancy? I just feel like everyone I saw at the hospital I went to would pass the buck because there was no one person responsible for my care. Should I find an obstetrician now or go to my old GP? When pregnant with Lola I was told that I had to go to the hospital I went to because they were the only ones that would take me however now I have found out that that is not true.

[Schmickers]

As far as future pregnancies go, if you want continuity of care, you have a few options. One options is to go private with an obstetrician; this will mean all of your antenatal care will be from the same person, with your care during the birth begin from the midwives at whichever hospital your OB referes you too, and possibly/probably your OB, depending on his policies.

Your second options, if you have access to it, is to find a hospital where the midwives follow a Caseload model of care - you will be allocated to one midwife or a small team of midwives, all of whom will be responsible for your antenatal care, and at least one of whom will usually be there for your birth.

Your third option is to look at shared GP/hospital care - your GP can do most or all of your antenatal care, but most likely will not be involbed in the birth.

Your fourth option would be to consider an independent midwife. An independent midwife can do all of your antenatal care; can provide full care during a home birth; or can be there as a support person (but not your primary clinician) during a hospitl birth. Although this may not be an option to you after next year, when independent midwives will no longer be allowed to be registered due to the insurance crisis.

As far as whether the hospital is telling the truth, autopsies can take a long time, but I understand that when trust is already an issue between yourself and the hospital, it is easy to be skeptical. If you want to know for sure what went on diuring your antenatal care and birth, be aware that you do have a right to see the records and documentation of your antenatal care and birth. Some hospitals may charge a fee to copy them and make them available to you, but they must make them available to you if you request it. If you choose to go down that road, you can apply to have copies sent to you, and once you have them, make an appointment with an obstetrician or an independent midwife that you trust to go over them and discuss their content. Midwives, obstetricians and nurses use particular terminology that can be hard to understand if you aren't trained; even words that mean something in general conversation can mean something quite different in "medical-speak". You should have someone who knows the language help you decipher them.

Hope this helps.

[Berry1]

Hi Kaylee,

I am sorry for your loss hun , it is an awful thing to go through. I lost my daughter at the end of Oct 08 and her 'full' autopsy results came in 3-weeks ago, I only got in to see the geneticist to have them explained yesterday, so it took about 7-months, which I was told at the beginning would be the case. I got her 'top line' results, which did include some internal in 3-4 weeks, so 12-wks does seem a bit long for just external, but I guess it can differ hospital to hospital.

I hope you get the truth and good care for your next pg. Some of the ladies here have given good suggestions.

Take care

[JellyBean]

A doula may also be a consideration. A doula is there specifically to provide you with emotional support and to be your voice during labour- regardless of whether that will be at home, in a birth centre or in hospital.
I had a personal midwife for my first birth via a community based midwifery program. Her constant support before, during and after the labour at home was by far the most positive thing about my entire birth - which ended up being a hospital birth with intervention.

Best of luck. xx

[mummytogirls]

Hi Kaylee

I read Lola's story in teddy Love Club news letter tonight. The photos looked really beautiful.
We were told we would have to wait 3 months as well for Maddison's Autopsy. I remember thinking at the time"wow that is forever away" I then rang my GP and she said she would be able to get them early. We received a phone call from her 6 weeks later. I still attended the appointment with out fetal Specialist to see if she had anything different to add. I also took Maddison's autopsy results to another hospital to get a third opinion. You can ring up where Lola's autopsy was taken place and ask then when they think it would be available. ( I also did this)
I was relieved to get the results I felt it gave me closure.


I hope you are looking after yourself
xx
Rachel

[Tobily]

You can ring up where Lola's autopsy is taken place and ask for when they think it would be available. ( I also did this)

I think this is a good idea. If nothing else, it will help allay your fears that information is being with held from you or that the hospital is stalling to cover itself.

I also think Schmickers advice about getting some independent support is good. Get your antenatal and birth notes, and the autopsy results and get some more opinions.

While we don't know what went wrong to cause this horrible outcome, I think it's fair to assume that you may well be given the sanitised version if your only source of information is the people who were involved in your care. So from that perspective alone it makes sense to get some independent opinions.

I read your blog last week and I'm so sorry for the loss of baby Lola. I hope you can find some closure and some answers