I don't know much about TTTS either, but I know the pain of losing beautiful twin boys.. Take care and know that you, your family and your beautiful son's are being thought of.. I am sure you will find many beautiful ways to remember them..
Sarahrach - how are you doing today? One of the ironic things about the grief journey after the death of your babies, is just how unpredictable it can be. I thought I was doing ok, but then I read about somone who had just experienced an extremely premature birth and the death of their baby, and in an instant I was back reliving my own experiences.... even more than a year on.
So I guess I am trying to say, expect variable days..
Ok here a few of the memorial ideas I found most helpful - To Write Their Names in the Sand, Say it with Flowers Rory's Garden, Waterfall Angels - these sites use your darling boys names to take wonderful tribute photos. There are also others - say for instance names written on sea shells, or on the pavement in coloured chalk, or with coloured stones or computer generated written in the stars or clouds. There are also sites where you can request jewellery be made, or candles. I will have to send you these links after I go though my list. To Write Their Names in the Sand is run by Carly a bereaved mother, whose dream about her son Christian became the inspiration for her beautiful photos - she has also expanded her repetoire, so you might like some of her other ideas.
Hi Dory - I'm doing ok today. I can see what you mean about the ups and downs. It helps to talk about my babies and I'm getting pretty involved in advocating how identical twin pregnancies are managed from an OB perspective through to putting together a information sheet for parents when they find out they are having identicals. I'm hoping once that's complete websites such as Belly Belly will consider putting it up as a sticky so at least there is a point of reference moving forward.
I've made contact with The Royal College of Aust and NZ Obstetricians and Gynecologists and they have no standard practice for how OBs should manage these pregnancies including recommendations on frequency of scans. They have now added this to their agenda for the next meeting in November. So hopefully something may come from that.
Your memorial ideas are beautiful, I will Google and perhaps will find something in that list that will bring comfort.
Blest - honey, oh my goodness. I read your story, you sound like one of the strongest women ever. It helped me so much to read your words, some of which I've been thinking also. So thank you for being so strong for writing that and making it available to people like me.
Sarahrach - I am so so impressed.... well done on contacting FRANZCOG and getting them to put an item on their agenda. Effecting change can be slow going but you have already achieved so much. Are there guidelines in any other countries such as the UK or USA or Europe ( I know Europe is large ) that you might be able to draw from? Also have you thought about contacting the neonatalogists in the level 3/tertiary care/NICU hospitals who might also have some input into how twin pregnancies are managed? They might have a perspective. Or maybe the high risk clinics at the larger hospitals? I saw an obs who specialises in high risk pregnancies and TTTS ( one of the few Dr's who've successfully completed the laser ablation treatment, as I understand it) at the Mater at Brisbane although I didn't see him for that reason. I can PM you the Dr's name if you like.
BTW - BAL ( BlessedatLast) - is a simply amazing mother and woman, I agree.
I am sure you will find many beautiful ways to remember them..
Registered User
) that you might be able to draw from? Also have you thought about contacting the neonatalogists in the level 3/tertiary care/NICU hospitals who might also have some input into how twin pregnancies are managed? They might have a perspective. Or maybe the high risk clinics at the larger hospitals? I saw an obs who specialises in high risk pregnancies and TTTS ( one of the few Dr's who've successfully completed the laser ablation treatment, as I understand it) at the Mater at Brisbane although I didn't see him for that reason. I can PM you the Dr's name if you like.
Reply With Quote
Bookmarks