Hi Pandagirl,

So sorry for you loss, anytime is devastating to lose your angel but Christmas Day must have been especially hard.

I'd never heard of it before either and in 12 months my GP had never mentioned it as a possibility. Our normal FS was away so we saw a locum this time (semi-retired with many years experience).

It has given us some hope but trying not to get too hopeful in case they don't find anything (iykwim).

Will let you know how I go. I will be spreading the word if it is the case as I would hate for anyone else to go through months of heartache when there may be a solution.

Fingers crossed I can get some answers and pass them on!