sorry for your losses. We lost our first at 22 weeks a couple of months ago.
When you say you tested mildly positive for lupus, do you mean lupus the disease or the lupus anti-coagulant? The latter is actually unrelated to lupus and causes blood clotting which can lead to recurrent miscarriage. If you have this you may need to be on injected blood thinners as well as aspirin... I may be suffering from a similar condition so I've read a lot about it. I'm not a doctor so obviously this is just advice but it seems like your doctors haven't explained things very well to you... if you like check out hughes-foundation.org and check the diagnosis link.
On the upside if you have this treatment greatly improves your chance of successful pregnancy.
Thank you, Flowerchild for pointing me to this thread and thank you for all the valuable information you give here. I've recently been diagnosed with a compound MTHFR genetical mutation and I am looking for ladies with the same diagnosis to share some information and experiences.
Like Mila, I have a double-gene mutation for MTHFR. My FS has just prescribed 5mg Megafol and extra B12 & B6 (which I have been doing since my first loss). My second loss was chromosonally normal. I would be interested in sharing information with other ladies, too!
WTH - how much extra B6 and B12 do you take daily? My doctor did not say anything about these vitamins, he only prescribed 4mg folic acid. I also take conception vitamins from Pregnacare.
Milla - 4mgs is an odd amount as the megafol is 5mgs... I am not sure why he would have specified 4mgs... The B12 and B6 are required for the absorption of the folate... Most vitamins shouldn't be taken in isolation as they are not absorbed correctly and this is why the other supplements are taken... Often women will also be advised to take calcium if heparin is to be used during pregnancy as well - this is because heparin causes a drain on the body's calcium stores. I hope that helps...
I'm 5 weeks pg with another baby and very nervous after 5 years of mmc. I had almost given up completely and was resigning myself when I had a BFP. I know I am not out of the woods by a long shot but just want to say, don't give up, no matter how hard it is, change specialists if necessary because when I did, it was finally discovered I have Hashimotos disease and this may have caused the MMC and infertility.I had every test done to discover what may have caused the loss of 8 babies and kept asking and testing until I got some answers.
New to BellyBelly - 2 miscarriages in 6 months (from Perth)
Hi all,
I am posting here as I think my pregnancy history most relates to this thread. I live in Perth (WA) and am 32 yrs and DH 33. We have been TTC for the past 2 yrs but seriously TTC (i.e using OPK, basal thermometer, charting) since Aug 08. Luckily I fell pregnant that very month Aug 08 and thought this was not that difficult...little did I know! Anyways everything went well...I went for my first scan at 7 weeks and saw the sac, fetal pole and heartbeat DH and I were over the moon. Then went for my second scan at 11 weeks naively expecting everything to be perfectly normal ...that is when we found out my little bean had no heartbeat ...I was in a shock and couldn't believe this was happening to me ...I didn't know anything about miscarriages and never thought it could happen to me ...I found it emotionally very difficlut to cope with my daily life and everything came to a standstill for me...I became very depressed to the point that I didn't want to see or meet anyone...not even my family or close friends...it took me almost 4 months to get back to some normality and finally accept what had happened. I recently fell pregnant again (Mar 09) - this time very nervous but still hopeful that things will work out ..I also booked myself in with a fertlity specialist (Dr Mazucchelli) at Concept Fertility just to make sure that everything was in order (hormone levels etc) he asked for bloodworks to be done...he suggested for me to take progestorone suppositories as he found my levels dropping...as soon as I started on them my progestorone levels went up and maintained at a good level - I was still very nervous and worried ...I went for my first scan at 8 weeks and again no heartbeat - I can't believe this happened to me AGAIN...Dr Mazucchelli asked me to wait out for another week just in case the baby was in an awkward position and that's why we couldn't hear the heartbeat ...you all can imagine how that wait for a week went.!!!..I could hardly concentrate at work or on anything ...I went back and again after a week and still no heartbeat ...I am heartbroken and don't know what to do. The doc asked me to go back after I've natuarally miscarried ...he hardly spent 2 mins with me explaining what I will be going through ....I was crying at that point so the nurse that was with him suggested I should see a cousellor that are available to patients at Concept Fertility and he said that 'she is very busy and she won't have time to see me!' ...He didn't even ask if we wanted to book an appointment and come back ....I was too emotional to say anything then but left very dissapointed ...I am going to book and appointment after the easter break with the Dr and tell him how I felt and also to ask what the next steps are and also what he is going to do to help me and what tests is he going to do as this is my second m/c in 6 months. I feel very confused and don't know who I can talk to ...I feel like I have no one who understands what I am going through and have no one that I can discuss my concerns with. I don't know if my post makes any sense but at this moment in time I am very emotional and its helping just to let it all out ....has anyone gone through a smilar experience ...do you have any words of advise for me? Apologies for this long post but I had to let it out ...thank you all for listening x
Bookmarks