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Thread: Recurrent Miscarriage and Fetal Death Information

  1. #19

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    Hi Scarlet,
    Welcome to Belly Belly and I am sorry that you find yourself in this thread. However, you will find us an amazingly optimistic and strong bunch of women so I hope you can join us in the TTC after recurrent miscarriage/still birth/late loss thread.

    FOI. Whatever pathology company your bloods were done by. Contact them and ask them how to go about having your records released. Usually it is a matter of writing a letter requesting your records. They have a time frame of I think 30 days in which to submit your records to you. They most certainly will charge you a photocopying fee. If your gp was a friendly chappie he/she could request a full set of your records from the pathology company and they won't charge anything. However, it sounds like your gp needs a dose of b vitamins!!!! It must be said. A request for the release of medical records HAS to be in writing.



    The arthritis and glandular fever are RELEVANT so I am glad this thread prompted your thought.

    I wish you huge amounts of luck and love on your journey.

  2. #20

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    Deb,

    Thank you. I hope all the information you have posted will help someone else as well.

    I actually called my GP clinic today and requested the pathology report I wanted. They were nice about it this time. They said as I had already had the results with my doc it should be fine, but htey had to let her know anyway. If that does not work I will file a written request.

    I read through the whole other thread and I will come over there to join you.

  3. #21

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    I look forward to getting to know you

  4. #22

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    Bumping thread

  5. #23

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    I'm new here but have had 6 m/c. I have had all the tests done that my Gynae and I can think of(and DH had his chromosomes and sperm tested)but so far, nothing untoward except DH has 8 -11% normal morphology which is or isn't a factor depending on who I talk to and I am Oestrogen dominant. The last 2 m/c were via D and C so that the baby could be tested. Only the last m/c was a successful test of tissue taken - showing a boy with trisomy problems.

    I do have children, but the m/c make me want to have a baby more and more each month. I've been TTC for 3.5 years with 4 m/c in that time.


    Feel like we've tried everything, diet modifications, TCM, Acupuncture, Sharkeys( not recommended - bad experience) eliminating coffee, alcohol , numerous supplements, herbs, goji berries, hypnotherapy etc etc.
    My age is now part of the problem but I'm still TTC and finding it emotionally very difficult ow.
    Jo
    Last edited by AustraJoey; May 12th, 2007 at 11:21 PM.

  6. #24

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    Austra Joey,

    I am sorry to hear of your losses. Have you seen an FS? In my opinion Ob/gyn's just aren't across all the in-depth issues, especially with recurrent m/c. Have you had genetic testing?

    As you live in Sydney I suggest a referral from your GP to the recurrent mc clinic at Sydney IVF. They can really help you - they test you and your partner for everything.

  7. #25

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    Thank you, thank you, thank you flowerchild for this thread. I copied the info and printed it out so I could read it at my leisure.

    Did you have these tests done when you were TTC or when you were actually preg?

    do they need to be repeated at a later date? or do you just test only once?

    Good luck to you and everybody on this site.

  8. #26

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    Deb is currently off site after having her little girl Imogen but I am sure she will be able to answer your questions when she is back

  9. #27

    Default Melbourne RI

    Hello,

    Can anyone recommend someone based in Melbourne in the area of Reproductive Immunology???? I've heard all the positive posts in this thread about Dr Sacks in Sydney and would love to know about someone with the same credentials in Melbourne.

    I've had 2 miscarriages, 12 weeks and 14 weeks and know I have a blood clotting disorder but also suspect there is an autoimmune issue going on. Had elevated ESR and out of control CRP (c reactive protein) when I miscarried.

    Cheers,

    Tess (Melbourne)

  10. #28

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    Thankyou for giving me a bit of strength xoxox

  11. #29
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    Hi Everyone,
    I'm fairly new to this site, but guess I was in the wrong area previously.

    I'd just like to say how great it is to find this discussion group. The information you provided Flowerchild is fantastic. It gives me hope. I have had 4 miscarriages (no children). My first pregnancy was a partial molar one - not sure if any of you know what that is, but the other three have been "unknown" reasons (first one was only diagnosed as I had a DnC).

    I was growing increasingly frustrated by all of the mc's. To make matters worse, it seems like everyone around me is getting pregnant and going on to have beautiful babies... not that I begrudge that... just hurts.

    My GP referred me to a gyno after the 3rd m/c. He performed a series of blood tests on myself and husband (chromosomes, lupus, hep and not sure of the rest). They all came back as "normal", but with the lupus - it was "mildly positive", so with the last pregnancy, I was put on Cartia - low dose asprin, but still had mc (approx 2wks ago). Although with this pregnancy, I had the flu and had high temp - can't help but wonder if this was part of the reason for m/c - am I just clutching at straws??

    After this m/c the gyno has basically said he can't do any more for me and will refer me to a fertility specialist in Perth. I was feeling pretty low, but after reading all these posts, I feel inspired... I want to find out the EXACT tests I had and what the results where... not just "normal". I want to know exactly what the figures are... I'm not leaving my fate in other peoples hands. With all the information - I will be better informed when I go to see the FS (haven't made the appt yet).

    I guess that leads me to my question... Does anyone out there know Dr Roger Hart? He is the FS i've been recommended to, but would just like to find out if he's any good - or will I just be another name in a file?

  12. #30
    First-Timer Guest

    Default Will it ever happen??

    Hi Everyone,
    I'm fairly new to this site, but guess I was in the wrong area previously.

    I'd just like to say how great it is to find a discussion group on recurrent miscarriages. The information you provided Flowerchild is fantastic. It gives me hope. I have had 4 miscarriages (no children). My first pregnancy was a partial molar one - not sure if any of you know what that is, but the other three have been "unknown" reasons (first one was only diagnosed as I had a DnC).

    I was growing increasingly frustrated by all of the mc's. To make matters worse, it seems like everyone around me is getting pregnant and going on to have beautiful babies... not that I begrudge that... just hurts.

    My GP referred me to a gyno after the 3rd m/c. He performed a series of blood tests on myself and husband (chromosomes, lupus, hep and not sure of the rest). They all came back as "normal", but with the lupus - it was "mildly positive", so with the last pregnancy, I was put on Cartia - low dose asprin, but still had mc (approx 2wks ago). Although with this pregnancy, I had the flu and had high temp - can't help but wonder if this was part of the reason for m/c - am I just clutching at straws??

    After this m/c the gyno has basically said he can't do any more for me and will refer me to a fertility specialist in Perth. I was feeling pretty low, but after reading all these posts, I feel inspired... I want to find out the EXACT tests I had and what the results where... not just "normal". I want to know exactly what the figures are... I'm not leaving my fate in other peoples hands. With all the information - I will be better informed when I go to see the FS (haven't made the appt yet).

    I guess that leads me to my question... Does anyone out there know Dr Roger Hart? He is the FS i've been recommended to, but would just like to find out if he's any good - or will I just be another name in a file?

  13. #31

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    Default Hi from a Newbie

    Hi there - Thanks Flowerchild for this wonderful site. I am from New Zealand and in January loss my little girl Ayla at 26 weeks gestation. After 4 months of waiting for results, reasons, answers for why this happened, we have been told that the pathologist is pretty sure I have Massive peri-villous fibrin deposition. I have also been told by the specialist here that they do not know a lot about this condition and do not know how to "fix" it, oh and the success rate is not high for future pregnancies. So in shock I asked what further tests the hospital were going to do - they told me none - but come and see us if you get pregnant again! Being as stubborn as I am(!) - I have decided to do something myself (as a starting point have had some blood tests, seeing a Naturopath, spent hours on the internet etc) - and this is how I came across your website. I would appreciate talking to other people who have this condition or similar to share idea's, facts, suspicions etc.

  14. #32

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    First Timer,

    sorry for your losses. We lost our first at 22 weeks a couple of months ago.
    When you say you tested mildly positive for lupus, do you mean lupus the disease or the lupus anti-coagulant? The latter is actually unrelated to lupus and causes blood clotting which can lead to recurrent miscarriage. If you have this you may need to be on injected blood thinners as well as aspirin... I may be suffering from a similar condition so I've read a lot about it. I'm not a doctor so obviously this is just advice but it seems like your doctors haven't explained things very well to you... if you like check out hughes-foundation.org and check the diagnosis link.
    On the upside if you have this treatment greatly improves your chance of successful pregnancy.

    If you like to chat more about it give me a yell.

    Rozzie

  15. #33

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    Default compound MTHFR

    Hello,

    Thank you, Flowerchild for pointing me to this thread and thank you for all the valuable information you give here. I've recently been diagnosed with a compound MTHFR genetical mutation and I am looking for ladies with the same diagnosis to share some information and experiences.

    Anyone out there?

    Thank you

  16. #34

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    Like Mila, I have a double-gene mutation for MTHFR. My FS has just prescribed 5mg Megafol and extra B12 & B6 (which I have been doing since my first loss). My second loss was chromosonally normal. I would be interested in sharing information with other ladies, too!

  17. #35

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    WTH - how much extra B6 and B12 do you take daily? My doctor did not say anything about these vitamins, he only prescribed 4mg folic acid. I also take conception vitamins from Pregnacare.


    thank you

  18. #36

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    Milla - 4mgs is an odd amount as the megafol is 5mgs... I am not sure why he would have specified 4mgs... The B12 and B6 are required for the absorption of the folate... Most vitamins shouldn't be taken in isolation as they are not absorbed correctly and this is why the other supplements are taken... Often women will also be advised to take calcium if heparin is to be used during pregnancy as well - this is because heparin causes a drain on the body's calcium stores. I hope that helps...

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