So sorry you are going through this. I notice you are in Victoria, the specialist at the Royal Women's hospital is one of the leading experts in the field of TTTS (twin to twin transfusion syndrome, which is what it sounds like you have described) so you could not be in safer hands than his. He also has an excellent website which I will try to find for you, it details all the phases of TTTS and the treatment options available. If it is not him you are seeing on Monday then your OB may refer you to Melbourne for treatment. I hope everything goes ok for you
thanks heaps for that!! the doctor we are seeing is Dr Andrew Edwards at the monash. We are about 3hrs north of melbourne and the lady who did the ultrasound made the arrangements for us. That would be great if you could find the website!!
I hope everything goes well for u on Monday and both ur lil bubs are doing alright!
i agree with Mildez- small towns make things out to be worse then what they are & do send u where the care is "just incase", better to be safe then sorry, but i really am praying ur lil ones will be fine!
Hi mummynelly, My boys are now 8mths old and I had gone through something simular with my pg they were monitoring me for TTTS because of the size of my little one and he also had low fluid they were looking at flying me to brisbane. I had to have 2 scans a week and at 25 weeks I had to go in to hospital for bedrest as my cervix was opening as well. The fluid of my little one didn't change through my pg but if it went any lower he would of been stuck. I ended up having them at 33wks and due to my little one having difficulties. The thing with TTTS is it can go from bad to worst in a matter of days. Do they scan his little bladder to see if its smaller then it should be thats another sign of TTTS especially with the one that has low fluid levels.
I can imagine how you must feel at this time.
I will be popping tomorrow to see how you scan went don't forget to ask heaps of question at your scans, whats that, whats this you feel a little better when you know what to look for when they zoom it on things.
I have all my fingers and toes crossed for you.
Take one day at a time
I hope its nothing serious. What a stressful time it must be.
If you don't mind me asking is it the amniotic fluid that one bub has too much off and the other not enough or is it blood/nutrients from the placenta one is getting lots and the other not enough? There is a big difference between the two. Also are bubs identical or faternal?
Did you end up finding out what bubs are?
From what the other ladies have said it sounds like your in excellent hands and the fact your seeing them on Monday not today or tomorrow must be a good thing. If it was extremely serious I'd imagine they would want futher scans now not in the next few days.
TTTT is pretty common especially with ID twins although can affect faternal twins also. The amniotic fluid thing is not that common and many people wouldn't have alot of experience with this.
If you want me to write about the risks of bub having both not enough fluid and too much I can but will wait for you to reply first to make sure it is fluid we are talking about and not blood.
hi, yes its the fluid, one bub is taking too much and the other doesnt have enough. any info would be great thanks! she said the babies are identical also. we didnt find out the sex she stopped the scan once she realised there was a problem. The scan showed one bub was 4-5 days behind the other growth wise so it had only happened recently but she wasnt sure how rapidly the fluid was going. i hope that all makes sense!
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