Twin to twin transfusion syndrome - laser surgery etc

[Charlotte91]

No experiences, just wanted to send some positive vibes and you and your girls will be in my thoughts.

[Traveller]

One of my closest friends has gone through this, but it started much earlier in her pregnancy. Sadly after her lazer surgery the situation reoccurred and she had to have it done again. The good news is that there are some wonderful doctors who are becoming very experienced in this type of surgery and their outcomes are good. My advice is to write down any and all questions you may have, and to check out TTTS support groups of which there are at least one or two on facebook. I will be thinking of you and your girls.

[~TT40~]

*hugs*
no experience, im not even sure what the procedure entails but im sure it isnt good...
let us know if there is anything we can do.
thinking of you and your little girls

[mrscricket]

Oh honey I'm sorry to hear this news. I really don't have any advice, just sending you hugs. I started to show signs of it towards the end of my pregnancy - at around 33 weeks but the girls solved the problem by arriving at 35wk2days. At that stage, my only option would of been delivery so I don't have any knowledge of laser surgery etc. Have you had a look at the AMBA website? Its a multiple birth site that has a forum and you may get some stories or answers from there? You have to post 5 times I think before you can access the whole site but that's pretty easy to do.

[thirdtimelucky77]

Hard to believe but today I am 30w + 3 days! I still have TTTS but its stable in the sense that the twins are shunting. Fluid and blood between one another, but neither baby is dangerously low on amniotic fluid. The bigger baby is measuring approximately 110grams ahead of the smaller baby and my DR thinks they will need to be delivered around 34 weeks.

However, I am hoping to get to 36 weeks I am still at work and we will be settling on our new house Wednesday this week and moving in on Wednesay. I just feel really lucky to have avoided needing laser surgery and that both babies are still alive and growing.

I wanted to update the thread for anyone who may be dealing with TTTS in the future. It's been hard having 2 - 3 scans per week and so many Dr's appointments - but I have the most amazing medical team you could ask for and feel incredibly lucky, i trust them explicitly.
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