Squidipa, wishing you a safe journey xx

Just a quick update from me, we had Nakita's appointment with the physio at the hospital today.

And well I am glad that I brough up my concerns and got the referral, I don't feel like I was over reacting now

Nakita has been diagnosed (I hate that word as it makes her sound sick!!) with Hypermobility, so basically she very flexible/too flexible, and her muscles, ligaments and tendons are weak/lose/floppy. Which means she has to work a lot harder than a person with normal muscular control to be able to do certain types of movements.

So things that require the use of stabilising muscles, she is good at like standing still and sitting upright, but anything of a transitional movement such as rolling, moving from sitting to on the floor, climbing over things, pulling herself up etc are very hard for her.

We did the gross motor skills chart to see how she scored to get an idea where she was on the charts (another bad word ), to create a benchmark. She scored at 27, and based on her corrected age of 10 months she wasn't even close to the bottom of the chart She is the equivalent of an 8 month old on the 5th%ile, which is a bit scary
but I am happy having a starting point IYKWIM.

All in all it was a very positive experience, the physio we had was just gorgeous lovely woman, we are really thrilled with Jane!!

We have a range of exercises to work on to improve her muscle strength, and transition movements, and we have piccies to take to daycare as well, and I will run them through the exercises next week, they have already been doing the ones we have asked so far.

I am little bit frustrated as if we had stayed under the WCH system and not transferred private that it would have been picked up/addressed sooner as we would have been monitored more closely by her original Paed, where as we were discharged from her Paed at 6 months, but we cannot look at that now, my focus is on Nakita from now on in

So all in all I am happy, I am glad that I followed my insticts and sought the referral.

Onwards and Upwards!!!

Sorry if you have read this elsewhere