Sorry don't have time to go back and read 3 weeks worth of posts, but just thought I would give an update.
Oh and thank you for all the tremendous support whilst we were away.
Ok here is the saga:
Well it has been a huge 3 weeks in Hospital.
We got to the stage where Lachlan was refusing his formula feeds so badly that he would only drink 10-20ml and then I would nurse him to sleep and feed him the rest of the 120ml bottle (3 hourly at the time). Well sometimes he would not drink more while asleep either, but we have always had more success while he is asleep.
So after a hard weekend of fighting to feed I rang my paed on the Monday and he admitted us into hospital that afternoon to insert an NG tube for feeding. They intially didn't offer the bottle and just fed him 120ml every 3 hours x 6 times a day. So we were getting 720ml into him and for a good few weeks prior (his feeding was all over the place really - somedays good and some bad), but we probably went from around 700ml feeds to anywhere from 350ml to 550ml (this was all we could get into him and that included us getting up at all times of the night to feed him while asleep). Anyway all was well and we started offering the bottle after a dayish and then putting the rest down the tube. He wasn't even reflux vomitting and my paed thought that maybe he had a sensitive throat as he wasn't vomitting with the tube bypassing the throat. Anyway we were released from Bundaberg Hospital on the Wednesday and we left for Brisbane on the Thursday to have a scope on the Friday. Apparently the scope showed a typical bad reflux scenario of a really red/inflammed oesaphagous and a weak valve, but all very typical of reflux he said. At this stage he wasn't going to admit us for further investigation as the scope showed nothing more then reflux and we just had to wait for the biopsy results to come back early the next week. Anyway that Friday night of the scope, we were giving him a feed at 9pm through the machine while he was asleep and I was waiting for it to finish so I could go to sleep myself. I was laying there watching him and he vomitted very badly. It spouted out like a whale with alot of force and he kept pulsating from his stomach like he wanted to continue being sick. I picked him up and it just continued to flow out his mouth . He always vomitted with his reflux but this was far more then he had ever vomitted before. It was around the 60-80ml mark of vomit . It freaked us out terribly. On the Saturday he didn't vomit, but then Sunday came and he threw up his tube he vomitted with so much force. We went to emergency about 5 times over the weekend with him pulling his tube out and his vomitting and they finally admitted us into the Brisbane Mater Children Private Hospital on the Sunday night! Gosh each visit to Emergency in Brissy was no less then 3 hours, no wonder we won't live there. He did another power vomit on Monday morning at 3.30am at which he went straight back to sleep afterwards. I changed him as he was wet all over, and his nappy had not one wee in it from 8.30pm to 3.30am, and I changed his clothes and my active alert light sleeping baby didn't even budge as I changed his singy, shirt, and pants. They immediately put a drip in and took blood. He didn't vomit much after that so they released us on Wednesday, but he seemed to be in pain after his feeds, like his reflux was playing up again. Anyway long story but I left my bag in the carpark and realised as we were leaving brissy grr... so didn't get away as expected, so travelling through the night and we had originally planned to stop in Maryborough for Wade to do some work the next day there. Lachie played up all the way to Gympie so we decided to stop in a motel there, but no vacancies anywhere, so then we drove onto Tiaro to stay and then the vomitting started again with a feed we gave him through the pump, then he was terribly restless all night long. When we got home the next day at 2.30pm we had no sooner unpacked the car, put on some washing and gave Lachlan a feed, by which he refused so we gravity fed him and no sooner was it going in it was spouting out again . We went up to our local very small hospital where I also go to clinic to get him weighed and he had lost 240g in a week and a bit. Just when we thought we had finally got to 6kgs and now he is well below it (he is 6 mths old next week and at present only weights 5.91kgs). Anyway the doctor then rang my paed and we were ordered to get back to the Bundy hospital for monitoring. He vommitted alot in Bundy hospital again , but with my paed regulating his feeds in qty and frequency we have got to a happy medium whereby he is no longer vomitting and this is day 4 - Yay . My paed thinks we over extended his belly, but I know for a fact we have got good amounts into him before of the 700-800ml vaccinty. But this was only by offering 120ml bottles (which he rarely drank it all) and his last feed of the night we could sometimes get 200ml into him and also during the night we could get a good amount. So it all added up to an amount that wasn't too bad at all. But then things got considerably worse as time progressed from then. But then when we originally put in the tube what he didn't drink via the bottle we were putting through the tube, so regular 120ml bottles may have over topped him???? But then when we were in Brissy hospital they were feeding him 150mls every 4 hours and then continuous feeds overnight, amounting to 800mls for the day and he didn't vomit until we left, guess it all caught up with him - AGAIN???? But the 4 hourly feeding was the best thing as Lachlan is now drinking 110mls out of the bottle which is such a huge success, but it is hard to drag him out that extra hour as on 3 hourly he just wanted to wet the whistle, but atleast by 4 hours he is very hungry and feeding well for a nice change. So carrying him around for an hour to get him use to it, I guess I will have to do. So at the moment we are up to 710mls for the day, 3 x 110ml bottles (and in the last 3 feeds he is crying like he wants more - what tha....), then 80ml to go to sleep, then 10hours of continuous feeds of 30ml / hour. Guessing this is keeping the vomitting at bay?? Oh I don't really know, could have been a bug too, but they tested his poo but the paed said that there are different strands that they may not have tested for either. Paed also suggested it could be his reflux playing up badly too, but gee that sort of vomitting it is hard for me to understand that as he has never ever vomitted like that ( a tap that wouldn't turn off - probably 60-80ml). I also asked the paed earlier in the week could the scope have aggrevated him, as it was a coincidence the scope was Friday morning and the powerful vomitting started Friday night and in the last couple of days he has finally agreed with me as previously he said no no, but I think he is still just scratching his head as are we. He did numerous tests on him in hospital Blood/poo/urine/xray of tummy/ultrasound and cat scan on his head (incase there were blockages causing headaches causing vomitting). But nope all was clear, so we are somewhat confused, but he hasn't vomitted in 4 days so what we are doing at present is working thank god, but he still appears to be loosing a bit of weight which I will have to keep a very close eye on. Sorry about the long ramble but in order to explain what has been happening I had to put in quite a bit of detail. At the moment he is sleeping terribly at night, he was up every 2-3 hours last night crying after knocking the dummy out of his mouth and in that 2-3 hours he is tossing alot!!! Driving us nuts as he is beside our bed in the cot and with that noisy machine for his overnight feeds I feel like a walking zomby today . I think I have explained everything, ohhh and his biopsy results showed that no enzymes were missing, I think this means no allergy but am yet to find out more about this too, as they always suspected he had a cows milk protein intolerance from his poos??? So maybe he is not, will let you know.
So on the whole things are considerably better, just hope his weight gets back on track now.
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