Kirsty your positive attitude is such a credit to you! I hope you get something sorted about the helmet. Does it cause any other problems or is it mainly the look of his head that is the worry? As you said, it would be so hard for him at school & great if you were able to help the process. All the best with it.

Emma had a MCHN visit yesterday. Her weight gain is still quite slow, now averaging 90g a week, but the nurse wasnt worried. She said if she was hungry she wouldnt be sleeping through the night. She also noted how active Emms is and said its no wonder shes not putting on more - she's burning it all off! So all is well here.

Sorry for no personals, I have just read through everyone's posts, I wasnt getting the reminders, but I will try to keep up again now, I promise