I was hoping I would never have to post here again, but sadly we have lost another little girl. Our first daughter, Emily was stillborn at 28 weeks with no cause found. After an early miscarriage, I fell pregnant again and our beautiful daughter, Julia was born, who is now 18 months old and the light of my life. After deciding we wanted a sibling for Julia, I fell pregnant in April this year and was hoping all our bad luck was in the past.
Unfortunately, this was not the case, and after a not very positive nuchal scan which showed an umbillical hernia and possible heart defect, we had a cvs test done, only to discover our little baby had Trisomy 18 (Edward's Syndrome). This syndrome, unlike Down's Syndrome, has no hope of any type of life for the baby, and most don't make it to full term, and those who do, don't live past a few weeks. After going through a stillbirth with Emily after such a long time, we made the heartbreaking decision to end the pregnancy at 16 weeks, saving our little baby any more pain in her short little life.
Our little girl, who we named Skye, arrived on the 8th July after 24 hours of being induced. I never thought I would have to go through all that again, and it brought back all the horrible memories of my labour with Emily. We saw our little girl, so tiny and precious, and was able to hold her. We had her cremated and will one day soon scatter some of her ashes near Emily's grave so they can be close together.
I'm finding it hard to properly grieve for Skye, as Julia demands so much of my attention and has really been affected by my going to hospital and then the subsequent sadness that has filled our house. I have been pregnant 4 times now, and have only one live child to show for it. Julia is such a joy to me and I want to give her a sibling and I'm hoping I can find the strength to try again.
Hopefully all our bad luck has passed and we can have another baby in our house again soon.
I am so sorry for the loss of your beautiful daughter Skye and Emily and your little angel too.
I was high risk for trisomy 18 and 13 and had the cvs done only to be told our DD didn't have it. I cannot imagine what you are going through - Just going through being told we should terminate the pregnancy due to the fact they thought she had 13 and 18 was traumatic enough. You sound ike a wonderful mother who will always make sure ALL her children are never forgotten
Doza - my sweet dear blossom. I am so so sorry that Skye was sick with trisomy 18, and you were faced with making such a heartbreaking decision. I admire your strength and love for your precious Skye. I too have suffered multiple second tri losses. It doesn't get easier, and I can't imagine how demanding it must be trying to grieve whilst parenting a toddler. I have always had the luxury of being able to grieve without those sorts of demands. Do you have family and friends close by who could help out from time to time, just to give you some time alone to work through your grief? Even if only for 10 mins or so? I imagine you don't want to let your precious Julia out of your sight for too long just now.....
Be kind to yourself.... and go gently. You will find a way.
Last edited by dory; July 28th, 2010 at 05:46 PM.
: addition
Another little girl lost...
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