Welcome to BB Bil and I am so sorry for the loss of your baby.
You will find much loving support amongst the women and men in our forums I feel sure. Trisomy13 is incompatible with life and unlikely to be a problem that will reoccur - none of this is helpful now as your grieve your child. Big big hugs my love and sending you much strength...
Thank you everyone for replying. The Dr said it's just one of those tragic events that 'just happen' and the chances of it happening again is 1%. I guess no one has a magic wand to make the pain and guilt disappear. When I am strong enough at times, I come up with philosophical arguments like 'everything happens for a reason' and 'it was meant to be' and so on. While we were TTC it did cross my mind that maybe I just can't get pregnant, so this event has at least answered that worry.
I have never seen a counsellor in my life, but I now recognise that I need help to deal with this. Everything happened so fast and the pain resulting from it is just too great for me to even try and rationalise. I was wondering if anyone knows a good counsellor who specializes in these sorts of events?
I've read other women's stories about how events like this has brought them closer to their DH and this is true for me too. He has been so strong and supportive.
I discovered this forum as I was desperately looking for some 'answers' and support. It has been very helpful receiving support, and also to read other people's stories. I just want to say how thankful and appreciative I am of everyone posting their stories here.
Dear Bil74,
So sorry for the loss of your baby, my heart goes out to you. What a heartbreaking time for you. Let yourself grieve in whatever way your body takes you. Two years ago I too lost my baby boy at 24wks due to Trisomy 13, such a rare condition but it happens. If you have any questions at all or just feel like talking I'm here.
Big hugs to you. I am so sorry that you have been through this. I am sure that it will take some time to process it all and come to terms with it a bit better.
I think a counsellor is a great idea. Perhaps you could ask your doctor if there is anyone he/she recommends. Or your local maternity hospital might be able to help also.
I'm so sorry your little one couldn't make it. Trisomy 13 affects about 1 in 10000 pregnancies and in many cases babies don't make it to the end of pregnancy. Around 3% live to six months, sometimes those with mosaic or partial trisomy can live a little longer, and VERY rarely some with full trisomy 13 survive. My dad's best school friend had a daughter with full trisomy 13 (Patau syndrome) who lived 21 years and 7 months.
To lose a baby is such a shocking, painful experience. I think seeing a counsellor is a great idea, perhaps you can talk to your Ob or GP about a referral for this?
Many to you, wishing you strength to come through.
Trisomy 13 affects about 1 in 10000 pregnancies and in many cases babies don't make it to the end of pregnancy. Around 3% live to six months, sometimes those with mosaic or partial trisomy can live a little longer, and VERY rarely some with full trisomy 13 survive. My dad's best school friend had a daughter with full trisomy 13 (Patau syndrome) who lived 21 years and 7 months.
Reply With Quote
Bookmarks