sounds scary. sorry no advice my only experience was in primary school one of my friends had epilepsy and would have those types of seizures. i remember getting taught how not all seizures are big shaky type ones and we were taught how to recognise if our friend had one and to just sit with her and get somone else to get a teacher. i dont remember if she actually had one tho, she was on medication.
hope they figure out your daughter and can manage them.