Alana had the cast taken of today and well it seemd to have worked well on the right leg. Unfortunately the left leg, which wasn't casted, seems to be really tight now. The physio considered casting both of them, which would have been awful, but decided to go for these fibre glass type of boots instead. She only has to wear them at night when she is asleep, so heaps better.
They have also referred her onto the Paediatric Neuromuscular Clinic. They want to rule out anything like Cerebal Palsy. So her appointment is on the 23rd. They have a team of four specialist who work together. They even said she might need an MRI. Surely she wouldn't have Cerebal Palsy aswell?! Her CF paed said that mild cases of CP can cause tightness in the limbs.
I am feeling very sad. I am sick of Monash Hospital. I am sick of seeing all these differerent doctors. The poor thing is only 16 months and she has spent more time visiting doctors and hospitals in that time than I have my whole life.
She is also having a Bronchoscopy on the 7th March. Its just to make sure she hasn't cultured any nasty bugs in her lungs. She will be knocked out completely. I am very nervous about this. I am worried about her being scared without me being there.
Sorry for my rant. I am just feeling a little sad. I just never imagined having to go through this. I never imagined this for Alana. I just don't understand, why Alana....
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