Hey Lara,
Just wanted to let you know that I realy feel for you. My dd is sick at the moment but it is nothing compared to a life long condition that your little family live with daily. I'm sure you and dp do a wonderful job. I know saying that does not make things easier. It won't make her eat her enzyms but I'm sure she is a very special girl and given to you because you are very special parents that love her very much.
:hugs:
Take care