Thanks girls. Yep its nothing new to me in a sence. Dj is my eldest so to compair him to any other kids was hard. But it was and still is mine and dh's reality. Our normal.
Angelman syndrome was originaly puppet child syndrom. Thank goodness it was renamed.
That is it exactly, Dan. The ONLY thing new to you is the name. This has always been the case for you. Learning the name changes very little.



You are completely amazing. I am not facing angelman, but just that I could be facing anything that has a name has me sad. I have moments where I grieve the dream. You seem so much more pulled together compared to me.