G'day happyVeggemites.
I dont mine AS. yes, its not easy but my boy, DJ would not be him with out it. I'm a strange one and i'm the first to admit it. i have felt some sadness at the things DJ may not be able to do to. but i embrace all he can do. he can smile, be happy. he is adorable and most of all, he is himself. but i can understand how hard it would be to see other families ride the 'coster of is it, is it not. ect. DJ was just over 2 when we found out. he was our first and honstly, my "normal" (please dont see this as an attack) DH and I take each day as it comes. we cannot be more blessed to have him in our lives. he is an earth bound angel. AS is something that is not widely known about but i tell people who ask all i know about it (thus my post here ) and hopefully i can open the eyes of people who dont know what it is.

And from us
Dj had his MRI two weeks ago and it came back "all normal" - which is good to hear. rules out anything 'else' so my mind is at ease. we have started early intervention too, they have lent us a walker - DJ took 4 (aided) steps forwards with it! i was so excited about an hour later realiseing my little man WALKED! yes it was aided. but the joy...i could have popped! we have also manged to fight a cold off with out a fit so no hospital trips (or drugs) which is fantastic! but i'll be holding my breath until we pass the 8wk mark fit free. DH has gone back to work now, so i'm on my own but i feel i can deal with anyting that happens.
i'm so stoked DJ walked (aided) when he walks with an aid, i'll cry.