another fork in the road

[maz]

So we had our Pead's appointment today.

Good first....He was ESTATIC that M's legs have straighted to normal as he put it. He said it must of taken alot of work ect and because of it M wont need to have shunts put in his hips can you tell im over the moon about it

bad news...we need speach therapy, and an OT. M would be lucky to say 5 words. He is highly intellegant dont get me wrong, he looks when you call him and he can follow 'commands' but he is unable to 'answer' and there is a defent block. He screams when he wants to be verbal an the words he does say are

Dinosaur
WOW
Mama
Ball
yay

I admit it..I do get alittle upset when I hear how well our baby buddies are talking but I have to remember my little man has brain damage still to what degree we still dont know

OT is for his 2 dimension seeing. eg doc puled out a puzzle that had a small and a large circle. Put out the cirlce cut outs and M put them promptly back into were they belonged, now take them circles back out and turn the puzzle around the other way and he still tries to put the circles in were he 'thinks's they should go the first time IYKWIM, He is also very unco and stumbles alot. He can open things and gets very frustrated and throws the item then.

I voiced our concern to the pead that we are worried that he may be excessively hypo...he hits, punches, screams, kicks and when you ask him to stop he continuous to do it laughing.

Thats it we've hit another fork in the road.....its a little depressing because all my boys now have had some form of speech therapy but I can so see the positive in what we're about to enbark on. I am also very happy to be doing it now, as I dont want to be doing all these 'things' and therapies when he's at kinder or at school. Its hard to do then and so much easier to get him into good habits now whilst he's so young.

Thanks for reading keep smiling and remember while you think your doing it hard...there is always someone in the world worse off then you

[*TripleJ*]

maz at least u have a little bit of good news and with this help he'll get better xoxox

[AliBaby]

Ccan I just give you some credit Maz and a

As a teacher i see a lot of children who do not get the help that they need and a lot of parents that refuse to have someone even mention the possibility that their child might need some sort of extra support.

What ends up happening is that those children suffer (mainly due to their parents pride) and it doesnt get anyone anywhere.

You are being a fantastic mum and getting support for your kids, to help them do the best that they can. You are being so proactive and giving him the best start.

That is great news about M's legs as well.

[Nettie]

Awww hun....

I wish I could draw a big hug here.... Like THIS big...

You are such an awesome Mum...

[feeb]

Great news about M's legs!!!!!

At least with speech you are getting help early so with any luck will be an easier journey as it was picked up early.

Hugs You are a great mummy.

xoxo

[diannescruffy]

That's great news M won't need shunts and having OT now. You are an amazingly strong woman .

Regards,
Dianne

[MistyFying]

Maz - some great news, and some not-so good news there.

[LimeSlice]

Keep pluggin Maz, you are an amazing woman and an amazing mum! And Tank is making such awesome progress

[Fleur]

keep smiling and remember while you think your doing it hard...there is always someone in the world worse off then you

I don't want to creep you out or anything but I think about you all the time when I am having a 'moment'...
...you really are inspiring

[kelebek]

woohoo about M's legs....

about the OT but like others have said by getting in early has to be a good thing for M

[christy]

I don't want to creep you out or anything but I think about you all the time when I am having a 'moment'...
...you really are inspiring

Me too!!!! :P

Deep breath Mazzy... I'm so happy he doesn't need shunts!!!! I'll keep for my special kids over there.

[maz]

you guys think of ME as inspiring..

nah ya all crazy

thanks everyone for your support.....Im really not that overly upset about it to be honest..more releaved to be getting soemthing done. It does hurt though..and ive said it before when I hear of kids his age doing wonderful 'normal' things but it goes part and parcel with having a special need's kid dont it ...... and life wasnt ment to be easy now im gonna go eat some pie hahahah

[Jahzara]

Great news Maz - you are an awesome Mummy !

xoxo

[rufalina]

Maz, You are an inspiration. And well done for helping M get to this point so well. We know that you are a big part of why is he doing so well. I hope that assistance you are going to get now will help him further. xo

[Nai]

That's great news on M's legs! I'm sure with some extra help he will progress just as well with his speech. And yes, you ARE inspirational Maz

[Tanya]

You are doing a fantastic job, Maz!!

[Rivlas]

Fantastic news about Ms progress especially his legs. I know how much work you have done to get this far.
Don't be to concerned about his speech as R who is Vs age was still not talking much at Christmas, DD1 had an appointment with the speech therapist a few weeks ago and it's all starting to come together. She wasn't too concerned as she said some boys take longer than others.
He is also a very switch on child.

[Footsteps]

maz you really are a wonderful woman and mummy. theres always someone worse off is so true. im so glad that M's legs are ok and i hope the ST helps. xox