thread: Anyone using Haberman Special Needs Feeder Bottles?

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  1. #1
    Registered User

    Nov 2007
    Murray Bridge, SA
    1,600

    Yes, Jodie - Liam has Pierre Robin Sequence.

    I thought you used some other bottle than Habermans?? Where to you order your teats from? I need some more and have no clue where to get them - so I'm going to ask the hospital (got our neo-natal follow up next week).

    Also - you mentioned in your first post about new teats. Are these from Medela or someone else? Can you tell us here or if not - PM me. I'm interested

    Hope you & Kane are doing well - I see he's had a birthday! Well done little man!! Has he had his palate surgery yet? What's happening with him now?
    Last edited by Nettie; August 7th, 2008 at 12:20 AM.

  2. #2
    BellyBelly Member

    Oct 2007
    Ever so slowly going crazy...
    2,268

    Hi babe!! We dont use the habermans, we use a Cleft bottle and teat.

    But the teats had a valve in them. Very annoying, but the bottle worked really well. They have bought out a new teat that has no valve, just a special shaped teat. And we love it!!

    Its at the chemist, Chu Chu brand, for Special feeding, esp clefts. Our chemist doesn't even stock the other ones now, I checked today!! They order them for me if need to, and it takes just a couple of days.

    Kane is going so well!!! He has his palate op in Oct/Nov, and there putting in gromits now too to help with his hearing. Also his surgeon is doing another lip repair to fix a small bit that sticks out a little. So he's having the 3 in 1, which saves him being knocked out 3 times... I'll post a new pic soon... hope all is well in your neck of the woods!!!

  3. #3
    Registered User

    Jan 2008
    Country Victoria
    1,991

    Smile

    Hi There,

    Toni, I have sent you an email in regards to the Haberman Parts - sorry it has taken me a while to get back to you, I have been busily preparing for Matilda to come home tomorrow.

    I did not know of Matilda's cleft palate (she only has the palate) or small chin before the birth although they did look very hard for it in the ultrasounds as she has a chromosome deletion (which we knew about from an Amnio done at 16 weeks) and these two things can occur as part of the deletion.
    Although the cleft and chin are the only things that seem to have occured. The deletion had a very large list of things that may have been wrong with her, so it was a big relief that these were the only things she was born with.

    Yes, she does have PRS - I was given a pamplet which states that in Victoria alone there are approx. 10 babies born with this condition each year. Although in the hospital since we arrived there has been 4 babies (3 Boys and Matilda) with the condition and their birthdates are within 1 month of each other. Matilda is the only one so far that has required the jaw surgery - although 1 of the boys may need it done soon.

    Better go and get some rest before the big day.

    Deanne.