Hi There,

Toni, I have sent you an email in regards to the Haberman Parts - sorry it has taken me a while to get back to you, I have been busily preparing for Matilda to come home tomorrow.

I did not know of Matilda's cleft palate (she only has the palate) or small chin before the birth although they did look very hard for it in the ultrasounds as she has a chromosome deletion (which we knew about from an Amnio done at 16 weeks) and these two things can occur as part of the deletion.
Although the cleft and chin are the only things that seem to have occured. The deletion had a very large list of things that may have been wrong with her, so it was a big relief that these were the only things she was born with.

Yes, she does have PRS - I was given a pamplet which states that in Victoria alone there are approx. 10 babies born with this condition each year. Although in the hospital since we arrived there has been 4 babies (3 Boys and Matilda) with the condition and their birthdates are within 1 month of each other. Matilda is the only one so far that has required the jaw surgery - although 1 of the boys may need it done soon.

Better go and get some rest before the big day.

Deanne.