i dont know my pead did tellme that he will come out with more and more as time goes on murray tippy toe walks when hes off in his own world he hummes this tune i dont understand and tippy toe walks
im sick of saying no and dont and what did i say dont touch that lol
From what I understand Lulu - most kids on the spectrum will have sensory processing difficulties however you can have sensory processing without having autism. A lot of the "classic" autism traits can stem from sensory issues and can be calmed with therapy.
Yep we have a licker and a toucher he too. He just can't stop touching/feeling things with his hands and feet. You can see him try and stop himself but he just have to do it. So what the hell we let him touch it. Most of the time. If I really don't want him to stop I will hold his hands and explain "why" he can't touch it. The why is very very important to DS. A valid reason will stop a tanty. eg at a hotel once he burnt has hands touching a naked light bulb so now if I say to stop - grab his hands and explain that it might burn or fall etc he will stop but we will probably get some other form of outburst like his new "quirk" is obsessively shugging his shoulders
I'm a bit of a lurker here as my nephew is going through the long process of being diagnosed with aspergerrs, and I want to know what I can do to help (even in a small way) and what his parents must be going through as they deal with him on a day to day basis.
I just want to say that all of you ladies have my utmost respect with the kind and loving way you talk about and deal with your children, even when they are being difficult. To see the light, while still in darkness, is a tremendous quality.
Christy & Maz - I have been reading your stories and they have brought me to tears several times. Your obvious love and devotion to your children, and your tenacity is something that we can all learn from.
ok my good streak has ended and the dark days are here ahhhhg
he has smashed all my pot plants thrown himself all over our kitchen pulled and bitten my toes under the computer desk thrown cussions at me and hasnt stoped screaching since 9am its 11.32 am atm
gah and want to know what it was all over
i didnt have any milk this morning for his ceral
i had to send my bfs cousion to the shop to get it and once i had it at 10 am he still carried on gah
btw the lil rascal didnt get up till 8am as he decided to scream from 12 am till 3am
nothing i did settled him so ive had broken sleep and i feel like death
how am i going to keep this up beeing early preggo gah and do housework at same time
Lulu.... its frustrating, but the OT assessment will help if there are sensory issues.
Today was okay... Only an hour of screaming and we are happy. I had an alone day with Matilda, which is rare and unusual.... she loved it, but I made a bad choice. We went out for a Soy-a-chino and they were out of marshmallows. After going to 3!!! coffee places, there were no marshmallows anywhere. I offered to buy her a chupa chup to make up for it... yep I gave her sugar. And Yup I paid dearly for that later. It was so exhausting.... why does 1 piece of sugar mean the end of the entire day?? We only had an hour of screaming, but she was hard work.
Anyway... Dee... its hard. Its exhausting... is he is any early intervention?
Lulu... Urgh... we waited ages for Matilda's first assessments.... the ones in Sydney we just went private and spent $$.
yeah he is im glad he is atleast then when i see his speach path she helps me to the best of her knowladge the disblity rep for where i live ive met heaps of times and shes giving me so much help
atm i just document as much as i can i finaly got him to finish his tanty took him driving up and down our driveway to stop him screaming in the end we sat in the car so he could watch a horse rolling in the dirt
hes now smashing toy cars against a wall and im so knackered i dont want to tell him off as hes playing and hes not annoying me
i hope u get all the assments you need
and yep ive caved and given murray leomonaide and paid dearly for it my mobile phone met the toilet
sugar and cafine is evil some days i wish it was never invented
Last edited by murraysmum; July 31st, 2009 at 06:28 PM.
: spelling lol
At the early intervention where Alex goes, when he first started there, they would say to use other words or sounds. Instead of no, do an exaggerated 'uh uh' and shake your head or add a gasp to it. My thing with Alex is to have an alternative as he is semi easy to divert from something he shouldn't have.
NO was a trigger word for many years here., I even told the kinder not to use it cause he would to balistic if it was said to him......I tried so many things in the end that I just put my hand up in the stop sign and it worked.....mind you I use to put it right in his face
having a better week...phew of the the pead today but not for WIlhelm....Mateauz turn this time round
ahhh I have to go rescue my fruit bowl...mateauz has a love for banana's atm
well today i got a call finaly my assment will be soon not in 3 mnths like i thought i have an appoitment next week to go see the lady and have a chat then she will talk it over with me blah blah hahah she had me on the phone for a good hour
murray hasnt been too bad this week hes signing more which im glad no more words alott of babbling
ive read a little bit but after living it each day i dont want to depress myself of whats to come or doubt myself as a parent
atm im coping it from all sides about this new baby apprently its cruel to have another when i have an autistic kid apprently i should abort it
frankly these comments made my blood boil and yes they came from my own mother
god some ppl dont have any idea do they
i know hes hard to deal with but i deal i love him to bits i know no other way ive delt through tantrums and him not speaking ect ect what could be worse
a newborn eats poops and sleeps im sure i can work that around murray cant be too hard could it ?
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