Lu I wish I lived closer so we could have a cuppa and you could let rip! Writing things down is really good babe...right the good, the bad and the ugly. It does help when you go for a big assessment. The money doesnt just doesnt help with medication and appointments...it can help with toys to help stimulate the good parts eg for us a DS for down time...a lap top recently.
its hard....yes totally agree. Its hard to think we made something so perfect and somewere along the line there was a hicup in the system. Our kids were given to us because some higher force knew we could cope, knew that we would love and protect these magical little people with our hearts and soul. Your doing a beautiful job babe..its hard to admit that we need help at the beswt of times..let alone help with our kids.
MM - OMG I got the same thing from my sister when she heard that i was getting my tubes reversed to have Vy. I havent spoken to her in 8 years and she was pi$$ed at me and called a shelfish biartch cause I was going to bring another 'spastic' kid into the world. Karma bit her on the butt......she now has 2 grandchildren both on the spectrum and now she thinks she knows everything :rolleye:
i got my assment date today omg im smiling from ear to ear the 31st of august they fly in and will do the last bit towards finding where he sits ont he spectrum
maz u have no idea how much ive cried in the last week over the negitve comments we have received even my other half is doubting keeping this baby but to me its a baby not a problem so murray is a bit delayed but hes got the best help out there things will be fine
my mother thinks murray is normal and its parenting that made him this way lest say we dnt talk much at all
*groan* Will we EVER be rid of the people who think that ASD is related to parenting??? WHY do they have to dwell on that part?
I know having parenting help and advice helped us come together as a couple and be able to work on things together, but BUT it did not "fix" the issues... and that is how we knew it was something more.
Having a second child, well we didn't have a diagnosis at the time we conceived Jovie. BUT DH wanted 2 children, he couldn't leave Matilda without a sibling, and I wanted heaps of children... we thought we weren't sleeping anyway, may as well have a newborn while we weren't sleeping. made sense to us at that time!! My mother's exact words were "If you can't cope with one, why would you have another?" Noice....
Now, DH is getting the snip. We really wouldn't be able to cope if we had another child, and one on the spectrum. My dream of having a boy is gone now. I no longer feel devestated over it, and am ready to go on our journey another way. It sounds sad and resigned but I'm okay with it all really.
Lulu mate.... I did that for months, from November - April.... I went back and forth as to if we really needed assessments, or if we should just move on and accept things. In that time, Matilda developed more quirks, more flapping her arms when she got frustrated, more flicking of her fingers.... all of that sort of stuff.... so now she had more obvious traits it was easier.
Sorry I have not posted in a very long time but things have been hard.
Right now I feel very confused and frustrated. My boy Oscar who has apergers is having problems in prep. Today was not good.
I was confronted by the teacher who wanted to make a earlier parent teacher interview. Although he has been progressing really well she was of the opinion to keep him for another year.
He is so academically advanced. He is 5 and can read his own books and does arithmetic (addition and subtraction). He even knows his 3D shapes and writes well. He even rides his bike well and is even swimming. He just does not play well or socialise well and lacks eye contact. Prep is a play year and I think too much emphasis is spent on 'playing' with things rather than learning. I think he may thrive in year 1 with the academic surroundings. I just dont know what to do.
My gut instinct says go and yank him out and home school. I just dont want him to redo prep. I see him getting better with socialisation everyday .... why do teachers lack the patience not every child is a cardboard cut out!!!
Sorry I have rambled a bit here ... I just need some advice from someone who knows where I am coming from.
Nicky URGH... I wonder if the prep teacher fully understands Asperger's... I mean often with "Normal" children, prep progression is due to social maturity, but our little kiddles won't have that social maturity... if they ever get it... Its not part of their beings.
Do you have someone helping? I mean a play therapist, OT or psych? Social worker etc etc?? I think if it were me, I would have ask for another meeting with some information regarding early childhood education and Asperger's.
We are deciding what to do with Matilda at the moment. Matilda has decided that she can't read. So the school has put 1 older child with Matilda everyday she's there to read with her, and then she does some sight reading stuff with the teacher's aide (who she connects with) for 30 minutes a day. The TA has said she's doing much better dealing with reading at another angle... sight rather than phonetics. So thats a huge breakthrough... The other thing is that Matilda knows words and will read them everytime she see's them, but if you ask her to read them, she won't. She's so afraid of failing, that she won't even try. If it were climbing the side of the building, she wouldn't have any problems... *groan*
Matilda's results were given to us today. She has high functioning Autism, NOT Asperger's as was originally thought.....
Its okay, it doesn't change who she is. It doesnt change what we do, who we are... anything like that. BUT its still hard to get my head around? YKWIM?? Me thinks the apple juice worked a little too well
I wish I lived closer so we could have a cuppa and you could let rip! Writing things down is really good babe...right the good, the bad and the ugly. It does help when you go for a big assessment. The money doesnt just doesnt help with medication and appointments...it can help with toys to help stimulate the good parts
eg for us a DS for down time...a lap top recently.
made sense to us at that time!! My mother's exact words were "If you can't cope with one, why would you have another?" Noice....
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