Hi gals, wow you ladies have def been jumping some hurdles while I have been away! DH has given up his computer addiction (WOW - if you know what that means I sympathise with you) and we have been sorting through a lot of relationship issues which has been great as we did our big 3 1/2 wk trip to Brissie so lots happening. good news-my super campion of a son held it together for the entire trip - GOD he is amazing! We took his body sock and his Grandma bought a small tramp - bless her heart but he was freaking amazing!!! Walked down the isle in his "good clothes" and everything- yes he ditched the shoes as soon as he sat down in the church but who freaking cares - last time we dressed im in formal clothes we had tanties for hours.
The only downside was a charming conversation I had with a friend of the bride and groom who is a psychology researcher (specialises in advertising and the effect it has on children) who sat through the dinner and proceeded to tell me I should get Xander reassessed as he clearly does not have Aspergers - because he talks so much. WTF. The in the next bredth went on to tell me about the professor she worked with once who you wouldn't even know had Aspergers except he was so blunt to his students. Gawd I HATE and yes strong word but I freaking HATE these experts who sit in their very small offices and decide they know everything and can watch our kids for 15 min and tell us what is wrong with them.
Reading over the journey some of you are on at the moment just breaks my heart because we have been right were you are now being told it's this,not that - autistic trait but not autism, ADHD - it is all so bloody familiar. All i can say is go with your gut! We are so happy with the amazing progress Xander has made in the year he has been formally diagnoised. Absolutely bloody amazing!!! My only advice is get a good OT - a lot of kids with autism are diagnoised with ADD/ADHD due to sensory processing issues which a qualified OT with experience in sensory processing can help you with! Also the low muscle tone/poor coordination also related to sensory processing!!! Our OT basically explained it like being deaf except it is their nervous system that is over or under stimulated and doesn't get the correct feedback/information to move the muscles the right way.
Hugs to you all as you travel this road especially Christy and Lestyrox with your medical tests hope they go as well as they can!
Maz you are doing such a fantastically brilliant job with Wilhelm - I so wish we could have caught up while I was down south - next time I am def calling in :-) Hope you are having a fab time in Brisbane!!!
Murraysmum - hang in their chicky - you CAN do this!!!
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