Aspergers/Autism/Sensory Integration Chatter #2

[Lulu]

Wow, I had to go back and read to see where we all were..

Sarah - that is SO BRILLIANT about finding a good school for ds. How much better do you feel?? I can't tell you how much better I am for knowing DS won't be up against...I dunno - you guys get it

Mum was chatting to my uncle on the weekend. He is a teacher and a bloody good one. She was telling him all about Mitch and he wants me to push for a pead/diagnoses. He will pass on the name of one he knows well that has said "anyone you know - pass them onto me" WOW. I haven't pushed the paed thing...cos I just can't afford it and that makes me feel like dirt. I really want him to see this guy purely cos my uncle says so.

I need the extra help and understanding but I gotta say you girls are the best thing I have come across about this . I'm so tired and worn out.
I've totally kicked xp to the curb. I used to welcome him coming here on the weekend for some respite (for me ) but it's not worth it in the end.
DS is doing really well - he manages to pull himself up in the meltdown stakes alot of the time but....there is still so far to go, if it will ever end, which it wont but it takes so much energy.
My ears are sore from screaming and it affects the way I react. I've started to explain how much it hurts my head when he screams, but it doesn't seem to have much effect except for him feeling bad when he settles down again.
But it does really really hurt and melts my own core when he screams like that. I am seriously going to get ear muffs.

*sigh

[~Saram~]

My ears are sore from screaming and it affects the way I react. I've started to explain how much it hurts my head when he screams, but it doesn't seem to have much effect except for him feeling bad when he settles down again.
But it does really really hurt and melts my own core when he screams like that. I am seriously going to get ear muffs.

I am right there with you! We are getting a lot of screaming here at the moment. Meltdown yelling as well as just plan screaming cause it feels good and he is frustrated. I tell DS to scream into his pillow cause it's just too much. His OT suggested we get HIM some headphones and let him play loud music - which I am yet to do but golly gosh it's on my do - to list and gettingout weighted blanket soon too!

Good luck with the paed if you go down that route. I really am so pleased we got Xanny diagnoised it is possibly the best thing I have ever done for him is give it a name which shields us all from some of the hurt.

[Lulu]

Hun, I told the checkout bloke Mitch had Tourette's the other day cos he kept saying you suck you suck over and over....it worked!

Mitch has an electronic keyboard which he loves to play in his room (again I need headphones!), maybe the fat man might like to put one under the tree?

xoxox

[~Saram~]

LOL at tourettes -I want a shirt for Xander (and the rest of the family :-) that says I have autism so get over it - well actually after the week we've had there could be a few more expletives in there for those well meaning endearing old (and young) ladies who have been peering my way. And can I just say a big thank you to my gorgeous neighbours who have completely ignored the sounds coming from my house in the past week - Has it really only been a week of holidays - and still speak to me over the fence and haven't called child services on me ... yet

And yes! there is a keyboard bound for Townsville courtesy of my gorgeous mum! Hmm headphones that plug into this could be an answer! thanks

[murraysmum]

we are haing sleep issues and screaming omg its starting to wear me thin the other day i was tempted to go outside lock the door and walk away he just sat in the corner and screamed and screamed and bounced his head off the wall when i was at group on thursday there sa woman there that brang her 3 daughters with her non autistic fair enough u couldnt get a sitter her son has autisim tho and she left early cause muz was getting rough poor kid was in sensory overload new place new souroundings new ppl i find it hard to conect with ppl like that and shes allways so derogitive about early intervention and special schools

im one thats verry excited by murray starting this i have so far gotten him to say " im hungry " ," i want up/ or hug",No i want this or that " but thats as far as i can get him efore he starts gettig antzy and does the face claw grrr i think its cause he knows we are going away for xmas and he hates traveling its going to be a long 9 hr trip

dp was beeing an a hole the other week and told me i was making stuff up he was home 24 hrs and appoligised i have no idea where all murrays anger is coming from and at night he wont sleep alone i have to trick him to sleep in his own bed via tight snuggle blanket teddy and rocking which caines my back but hey so does sleeping next to him

if anyone has any advice over early intervention with other kids ild gladly soak it up as we are starting mid january and ill be due april so i dont want to push too much in those months after bub

[christy]

I found a t-shirt that said "I have Autism, my mum needs chocolate not advice" and I nearly, nearly bought it.

I had to take Matilda to the shops today. My helpful friend wasn't able to help today to no fault of her own, but I was counting on it to get the last of the Christmas shopping done (I work Sat 12 hours). So.... I took her. It was the first time to the shops in.... nearly a year for her. She was good!!! She had issues with listening and not running off, but in retrospect it was amazing compared to her last year when I had to leave the trolley behind constantly. I mean in other people's eyes, Matilda was behaving like a naughty 5 year old, but in my eyes she was absolutely amazing.

I went into 5 shops in the hour we were there!!!!

She's still sick and has a slight temp, so that may have helped us. She's got another urinary tract infection which sucks, but at least its not contagious, and the slight temp makes her behave as a "normal" child would.

This time of year sucks for the lack of routine, but I have bought Matilda a clock and a calender for her room to keep track of what is happening next for herself. I hope it helps her!!

[maz]

ive got so much to catch up on

Ive been trying to concentrate on someone big time. Sunday night he lite tissues over a candle I had put in the boys room cause he wanted to see what flames looked like. My nerves are a bit raw atm with this, him wetting the bed again and his continuous pushing the buttons with poor V. She absolutely loves him to death and he keeps pushing her away.

Blahhh enough of my crap. There is so much more but I kind of leave it behind cause I dont have the energy anymore to think about it.

I just read over the last few posts...I LOVE the t-shirt . W has one that says

Someday I'll be your boss - which suits him to a t.

Will make more of an effort not to be an unsocial cow

look at the time of this post....and he's still awake